Prevention of Future Deaths reports · 2025
Regulation 28 report to prevent future deaths, reference 2025-0356, written 11 Jul 2025. A coroner writes one of these when an inquest reveals a risk that could cause further deaths unless something changes.
| Date of report | 11 Jul 2025 |
|---|---|
| Reference | 2025-0356 |
| Deceased | Myles Scriven |
| Coroner | Crispin Oliver |
| Coroner area | West Yorkshire Western |
| Category | Community health care and emergency services related deaths |
| Source | judiciary.uk record · original PDF |
| Responses published | 4 |
Text extracted from the PDF text layer. Reproduced verbatim, including the scan's own layout.
Regulation 28: REPORT TO PREVENT FUTURE DEATHS NOTE: This form is to be used after an inquest. REGULATION 28 REPORT TO PREVENT DEATHS THIS REPORT IS BEING SENT TO: 1 Dalton Surgery 2 CQC North 3 NHS England (Reg 28 Reports) 1 CORONER I am Crispin OLIVER, HM Assistant Coroner for the coroner area of West Yorkshire Western Coroner Area 2 CORONER’S LEGAL POWERS I make this report under paragraph 7, Schedule 5, of the Coroners and Justice Act 2009 and regulations 28 and 29 of the Coroners (Investigations) Regulations 2013. 3 INVESTIGATION and INQUEST On 03 May 2023 I commenced an investigation into the death of Myles Edward SCRIVEN aged 31. The investigation concluded at the end of the inquest on 11 July 2025. The conclusion of the inquest was that: Myles Edward Scriven died a natural death to which neglect contributed. 4 CIRCUMSTANCES OF THE DEATH Myles Edward Scriven died at Huddersfield Royal Infirmary on 16 April 2023. Contributing to the cause of his death was lack of adjustments for his Autism and Learning Disabilities resulting in incorrect decision making as to his care and medication. 5 CORONER’S CONCERNS During the course of the investigation my inquiries revealed matters giving rise to concern. In my opinion there is a risk that future deaths could occur unless action is taken. In the circumstances it is my statutory duty to report to you. The MATTERS OF CONCERN are as follows: (brief summary of matters of concern) While the rider of Neglect does not attach to the actions of the Dalton Surgery, the fact remains that between 16 and 20 March 2023 Myles had several contacts with the Dalton Surgery while he was suffering with an on going Pulmonary Embolism. Non of these resulted in a referral to secondary care. The combined evidence of three expert witnesses was that the manner in which his care was handled at this stage contributed to his death. The following are concerns that I have arising from the evidence in he Inquest. 1. Ignorance of what was required for Myles in the circumstances of his Learning Disability and Autism - the GPs clearly only had a superficial grasp of the regulatory requirements and realities to do with Learning Disabilities. They are clearly well intentioned and caring but their appreciation and approach seems to have been based entirely on professional experience and good intentions rather than real knowledge of what was required and how to implement it. Notably: •They repeatedly used the words learning difficulties and learning disabilities Regulation 28 – After Inquest Document Template Updated 30/07/2021 interchangeably and apparently randomly – I am not told that Myles had a personal preference about which to use that they deferred to. Essentially, they seem to have been ignorant as to the distinction. •They made only the most modest adjustments for Myles's Learning Disabilities and Autism. •They clearly had very little grasp of what the Learning Disabilities Register was and how it worked. Neither of the GPs who gave evidence were able to provide a solid, reliable, version of how it operated in their practice, when or/if Myles had been entered on to it, whether it was distinct from the psychiatric review - one seemed to conflate the two and the other said that it was something managed by a Nurse in the practice. It is quite evident that correspondence was coming in from Learning Disabilities Psychiatry but nothing at all from Social Services. This is not something that seems to have triggered any particular reaction at the GP level. They seemed to operate on the basis that the Learning Disabilities ‘box had been ticked’ and that nothing further was needed. In fact, Myles seems to have been on the Register from 2020 but by the 20 October 2022 when he had been at hospital in relation to his PE he had no Learning Disability Social Worker and concomitantly no VIP passport on admission to hospital . The GPs clearly had no idea of how important all this was. I heard evidence from a secondary care Learning Disabilities Professional that they, in secondary care, rely a great deal on primary care to get these things sorted out. Here, nothing went back from the Practice to the Learning Disabilities Service to chase these things. 2. The failure of the GP to record numeric observations properly on 20 March 2023. 3. The failure of the Dalton Surgery to undertake any rigorous and detailed internal review for learning purposes after this incident. 6 ACTION SHOULD BE TAKEN In my opinion action should be taken to prevent future deaths and I believe you (and/or your organisation) have the power to take such action. 7 YOUR RESPONSE You are under a duty to respond to this report within 56 days of the date of this report, namely by September 08, 2025. I, the coroner, may extend the period. Your response must contain details of action taken or proposed to be taken, setting out the timetable for action. Otherwise you must explain why no action is proposed. COPIES and PUBLICATION 8 I have sent a copy of my report to the Chief Coroner and to the following Interested Persons I have also sent it to who may find it useful or of interest. I am also under a duty to send a copy of your response to the Chief Coroner and all interested persons who in my opinion should receive it. I may also send a copy of your response to any person who I believe may find it useful or of interest. The Chief Coroner may publish either or both in a complete or redacted or summary form. He may send a copy of this report to any person who he believes may find it useful or of interest. You may make representations to me, the coroner, at the time of your response about the Regulation 28 – After Inquest Document Template Updated 30/07/2021 release or the publication of your response by the Chief Coroner. 9 Dated: 14/07/2025 Crispin OLIVER HM Assistant Coroner for West Yorkshire Western Coroner Area Regulation 28 – After Inquest Document Template Updated 30/07/2021
4 responses published against this report on judiciary.uk. A response is a body's written reply to the coroner's concerns; publication is at the discretion of the Chief Coroner's office, so an absent response does not mean nobody replied.
Mr Crispin Oliver, Assistant Coroner West Yorkshire Western Coroner Area H.M. Coroner’s Court Cater Building 1 Cater Street Bradford BD1 5AS 19th September 2025 Dear HM Coroner, Prevention of future death report following inquest into the death of Myles Edward Scriven ( Thank you for sending the Care Quality Commission (CQC) a copy of the Regulation 28: Report to Prevent Future Deaths, which was issued following the death of Myles Edward Scriven, in which CQC was named as a respondent. Firstly, we would like to extend our condolences and sympathies to Myles’ family and friends. CQC has a process to follow whenever a Regulation 28 report is received, including where CQC is named within the report. In line with CQC’s enforcement and internal specific incident guidance, policies and procedures, a Decision Review Meeting (DRM) has taken place. This initial assessment enables CQC to consider and determine any appropriate regulatory response. This can include monitoring, inspection and/or civil enforcement action to protect service users from ongoing risks; and to assess and determine whether there may be reasonable grounds to suspect that a service user may have sustained avoidable harm or been exposed to a significant risk of avoidable harm, as a result of registered person failure to provide safe care and treatment. Specifically in relation to Calderdale and Huddersfield NHS Foundation Trust, the local CQC operational team have held an initial DRM where relevant information from stakeholders and internally held information within CQC is shared and a course of action is decided on. Following this we have contacted the Trust to inform them we have received the Regulation 28 report, and they are sending us further information about the full circumstances surrounding this sad case and the actions they have taken, or are planning to take, to prevent reoccurrence. Calderdale and Huddersfield NHS Foundation Trust were last inspected in June 2018 at a well led level, when it was rated as good overall and for all key lines of enquiry. However, given your report into the death of Myles Scriven, and the length of time since we last inspected, we are considering our regulatory response following the initial DRM which may include carrying out an inspection. Please note this is confidential at this stage. The DRM particularly focused on concerns in relation to those outlined in your report including: • The impact of mental capacity assessments auditing, the nursing leadership walkaround of all wards auditing that LD and autism policies are applied in practise. • How the outcomes of any audits were acted on • Taking into consideration that much of the above which is now in place was already in place in 2022. But in Myles’s case it had no impact • Specialist staff recommendations were not followed up • The culture throughout the staff was not reflective of the specialist’s advice In response to the known challenges faced by people with a learning disability and autistic people when they access health care services, as well as feedback from people with lived experience, CQC had already begun a program of work focusing on the health inequalities faced by this population group. This includes taking action to review how we consider whether Trusts are providing safe care and treatment for people with a learning disability and autistic people. Specifically, we are reviewing and will update the guidance that we provide for our inspection teams to follow. This aims to prompt inspectors to carry out a more thorough assessment than currently takes place and gives them the necessary tools to do so. Our regulatory leadership teams are leading on this. Additional areas of work in this specific area focus on how CQC can work more closely with the Learning from Lives and Deaths -People with a learning disability and autistic people program ( LeDeR ) – sharing information and building closer links in order to do so more effectively. We are also taking steps to ensure our inspection teams have the right support and training to review how Trusts provide care and treatment for people with a learning disability. We are arranging some bespoke upskilling sessions for our secondary care inspection teams. This will cover pertinent issues including what people with lived experience have told us about issues they have faced when accessing hospital care. Further, it will support inspection teams to consider, understand and analyse how services are meeting the needs of their population. Since the 1st July 2022, all CQC registered health and social care providers have been required by the Health and Care Act 2022 to provide training for their staff in learning disability and autism, including how to interact appropriately with autistic people and people with a learning disability. This should be at a level appropriate to their role. On the 19th June 2025, the Oliver McGowan Code of Practice was published and laid before parliament by the Department of Health and Social Care. The code commenced on 6th September 2025 and is now legal guidance. The purpose of the code is to explain what is meant by training that is ‘appropriate to the person’s role’ and to provide guidance on how to ensure all staff receive such training. Compliance with the standards set out in the code of practice, is expected to ensure that every person receives high quality learning disability and autism training that meets their learning needs and is appropriate to their role. Importantly, this aims to improve the experiences and outcomes of autistic people and people with a learning disability when they access CQC regulated health and social care services. This means that CQC registered providers must ensure that they provide each member of staff with training that meets the standards set out in the Code in order to deliver the best possible outcomes. CQC will use the Oliver McGowan Code of Practice when considering whether providers are meeting the requirements of the regulation. Throughout September, the CQC’s autistic people and people with a learning disability team will be running bespoke upskilling sessions on the mandatory training requirement and code of practice with the aim of equipping inspection teams with the knowledge and skills they need to regulate this requirement effectively and consistently. Specifically pertinent to the case of Myles Scriven, the code of practice enables both providers and CQC to consider the extent to which learning is put into practice. I hope this response addresses your concerns and clarifies the role and remit of CQC in relation to this matter. If you have any further concerns or queries, please contact us via email . Yours sincerely Operations Manager West Yorkshire, Network North.
Mr Crispin Oliver, Assistant Coroner West Yorkshire Western Coroner Area H.M. Coroner’s Court Cater Building 1 Cater Street Bradford BD1 5AS 17 September 2025 Dear Mr Oliver, Prevention of future death report following inquest into the death of Myles Edward Scriven Thank you for sending the Care Quality Commission (CQC) a copy of the Regulation 28: Report to Prevent Future Deaths, which was issued following the death of Myles Edward Scriven, in which CQC was named as a respondent. Firstly, we would like to extend our condolences and sympathies to Myles’ family and loved ones. CQC has a process to follow whenever a Regulation 28 report is received, including where CQC is named as a respondent within the report. In line with CQC’s enforcement and internal specific incident guidance, policies and procedures, a decision review meeting (DRM) takes place. This initial meeting involves an assessment which enables CQC to consider and determine any appropriate regulatory response. This may include monitoring of relevant regulated services, carrying out an inspection and/or taking civil enforcement action to protect service users from ongoing risks. In addition, we assess and determine whether there may be reasonable grounds to suspect that a service user may have sustained avoidable harm or been exposed to a significant risk of avoidable harm, as a result of registered person failure to provide safe care and treatment. Specifically in relation to Dalton Surgery, the local CQC team held an initial DRM. Following this they have been in contact with the GP practice to establish the full circumstances surrounding this sad case and to request information about the action they also intend to take to prevent reoccurrence. They have received the information, including an action plan stating the improvements the practice intends to make to prevent future deaths and improve how they deliver care and treatment for patients with a learning disability and autistic people. Dalton Surgery has been inspected once previously, in October 2016, when it was rated as good overall and for all key lines of enquiry. At the time of that inspection, we specifically reviewed how the service managed the care and treatment of specific population groups, this included ‘people whose circumstances may make them vulnerable’. The inspection report reflected that we were satisfied with the care provided by the practice at that time. This included ensuring that systems were in place to share information with other health care professionals to enable them to deliver safe care and treatment. However, given your report into the death of Myles Scriven, and the length of time since we last inspected the practice, a decision was taken at the DRM to carry out an inspection and we are now in the process of planning a full comprehensive assessment. In response to the known challenges faced by people with a learning disability and autistic people when they access primary care services, as well as feedback from people with lived experience, CQC had already begun a program of work focusing on the health inequalities faced by this population group. This includes taking action to review how we consider whether a GP practice is providing safe care and treatment for people with a learning disability and autistic people. Specifically, we are reviewing and will update the guidance in respect of this, that we provide for our inspection teams to follow. This aims to prompt inspectors to carry out a more thorough assessment than currently takes place and give them the necessary tools to do so. Our regulatory leadership teams are leading on this. Additional areas of work in this specific area focus on how CQC can work more closely with the LeDeR program – sharing information and building closer links in order to do so more effectively. We are also taking steps to ensure our inspection teams have the right support and training to review how GP practices provide care and treatment for people with a learning disability and autistic people. We are arranging some bespoke upskilling sessions for our primary care inspection teams. This will cover pertinent issues including what people with lived experience have told us about issues they have faced when accessing primary care. Further, it will support inspection teams to consider, understand and analyse how services are meeting the needs of their population. Since the 1st July 2022, all CQC registered health and social care providers have been required by the Health and Care Act 2022 to provide training for their staff in learning disability and autism, including how to interact appropriately with autistic people and people with a learning disability. This should be at a level appropriate to their role. On the 19th June 2025, the Oliver McGowan Code of Practice was published and laid before parliament by the Department of Health and Social Care. The code commenced on 6th September 2025 and is now legal guidance. The purpose of the code is to explain what is meant by training that is ‘appropriate to the person’s role’ and to provide guidance on how to ensure all staff receive such training. Compliance with the standards set out in the code of practice, is expected to ensure that every person receives high quality learning disability and autism training that meets their learning needs and is appropriate to their role. Importantly, this aims to improve the experiences and outcomes of autistic people and people with a learning disability when they access CQC regulated health and social care services. This means that CQC registered providers must ensure they provide each member of staff with training that meets the standards set out in the Code in order to deliver the best possible outcomes. CQC will use the Oliver McGowan Code of Practice when considering whether providers are meeting the requirements of relevant regulations. Throughout September, the CQC’s autistic people and people with a learning disability team will be running bespoke upskilling sessions on the mandatory training requirement and code of practice with the aim of equipping inspection teams with the knowledge and skills they need to regulate this requirement effectively and consistently. Specifically pertinent to the case of Myles Scriven, the code of practice enables both providers and CQC to consider the extent to which learning is put into practice. I hope this response addresses your concerns and clarifies the role and remit of CQC in relation to this matter. If you have any further concerns or queries, please contact us via email Yours sincerely Deputy Director – West Yorkshire, South Lancashire and Cumbria
Mr Crispin Oliver
HM Assistant Coroner
West Yorkshire (Western) Coroner Area
HM Coroner’s Court
Cater Building
1 Cater Street
Bradford
BD1 5AS
Dalton Surgery
www.DaltonSurgeryHuddersfield.com
5 September 2025
Dear Mr Oliver,
Re: Regulation 28 Report to Prevent Future Deaths – Myles Edward Scriven
We write in formal response to the Regulation 28 Report issued to Dalton Surgery on
17 July 2025, with submission requested by 8 September 2025, concerning the
tragic circumstances surrounding Mr Myles Edward Scriven (MS).
Firstly, on behalf of the GP partners and all staff at Dalton Surgery, we extend our
deepest sympathies to Mr Scriven’s family. We wish to assure you that we have
taken the concerns raised in the Regulation 28 Report, and the family’s feedback,
very seriously. Our priority is to ensure that such a situation does not reoccur for
other patients.
In this response, we address the three key areas of concern highlighted in your
notice. To support the GP Partners in comprehensively addressing these issues, we
have enclosed a detailed action plan. This plan outlines specific measures, assigns
named accountable leads, includes auditable evidence, and sets clear timescales for
monitoring through our Bimonthly Practice Protected Time (PPT) meetings. Working
collaboratively with our ICB colleagues, progress will also be reported to the place-
based Quality Sub Committee and a full review of actions will be undertaken at a six
month follow up meeting involving key stakeholders.
Since receiving the Regulation 28 notice, we have implemented a range of actions to
enhance patient safety, strengthen clinical practice, and embed learning throughout
the practice. We also provided NHS England (
Quality, Northeast and Yorkshire) with written assurance on 29 July 2025 regarding
progress in these areas.
, Head of Clinical
1. Understanding and Supporting Patients with Learning Disabilities and
Autism
We acknowledge that our practice historically did not have sufficiently
robust systems in place to ensure consistent, proactive care for patients
with Learning Disabilities (LD) and Autism. Specifically, there was variable
awareness amongst staff of the additional challenges faced by these
patients in expressing symptoms, the need for collateral history from
carers, and the importance of reasonable adjustments in clinical practice.
Summary of key actions undertaken:
a) Designated three Learning Disability (LD) and Autism champions: a GP, a
nurse, and an administrative team member. The role of the LD Champions
will include advocacy and support for patients, improving health outcomes
and wider primary care engagement.
b) All practice staff have completed Oliver McGowan Level 1 training, with
Level 2 training scheduled for October 15th and 28th 2025.
c) New administrative staff receive mandatory LD training before
commencing duties; locum doctors are provided with LD awareness
packs.
d) Implemented standard reasonable adjustments for patients, including
extended appointment times, easy-read correspondence, health
passports, and proactive recall systems.
e) Practice Manager received bespoke training on discussing reasonable
adjustments with patients.
f) Engaged with Jessica Atkinson (Strategic Health Facilitator for Kirklees
Adult Learning Disability) to jointly review the LD register and enhance
communication aids, recall processes, and patient resources. A follow-up
visit is planned for October 2025.
g) Extended appointment length for LD and Autism Health Checks from 45
minutes to one hour.
h) Embedded improved safety-netting practices and clinical tools (CURB-65,
MEWS, CHA2DS2-VASc) to ensure systematic patient assessments and
recalls.
i) Added patient icons in SystmOne to flag LD and Autism status; employed
a dedicated coder to maintain accurate records.
j) Scheduled Capacity and Consent training for designated GP with DAC
Beachcroft on 8th October 2025.
k) Adjusted invitation scheduling for LD health checks to ensure all patients
are invited appropriately, with staff trained on tailored invitation
management.
These measures reflect both training completion and practical application,
safeguarding patients with LD and ensuring prioritised, appropriate care.
The Practice plans to undertake bi-monthly audits of all patients on the LD
Register to confirm its accuracy and updated care plans and hospital
passports where necessary. The purpose of the audit is to affirm that the LD
Register is being used with 100% accuracy and regular audits will continue to
be carried out. Please refer to the attached action plan for audit details and
scheduling.
2. Improvement in Recording of Clinical Observations
We fully acknowledge the Coroner’s concern that the GP consultation on 20
March 2023 did not include adequate recording of numeric observations (e.g.
oxygen saturation, pulse, respiratory rate).
Reflection from GP (also stated during the Inquest)
“I acknowledge that my consultation record was poor and lacking in important
details – particularly quantitative values for examination findings. This is not
usual for my way of working. I am confident that such observations were in
fact undertaken and were satisfactory, but unfortunately, they were not
recorded. In light of this, I have changed my practice: I now use internal
systems and templates to prompt and facilitate proper capture of these values
in every consultation.”
Summary of key actions undertaken:
a) Reiterated the importance of thorough documentation of vital clinical
observations during consultations, particularly for acute symptoms such as
breathlessness, through targeted clinical safety refresher training where
needed.
b) Introduced enhanced triage protocols and promoted face-to-face
assessments when clinically indicated.
c) Reminded clinical staff of documentation’s role in decision-making and
safety-netting; compliance monitored via audits and peer reviews, detailed
in the enclosed action plan.
d) Implemented consultation templates, digital prompts, Ardens templates,
and AI-supported dictation/scribing tools to improve accuracy.
e) Adopted a low threshold for same-day reviews or A&E referral for patients
presenting with breathlessness.
f) Provided additional training for administrative staff to escalate urgent
symptoms promptly.
g) Recent case reviews demonstrate effective triage and urgent management
of patients presenting with breathlessness, including timely admissions
and diagnoses of pulmonary embolism.
h) The practice has recognised the necessity of immediate same-day review
or direct A&E referral for breathlessness presentations, now standardised
in our clinical approach.
The Practice plans to undertake monthly audits of 20 consultations for the
three months to assess compliance with observation documentation. Our
target will be 100% compliance consecutively on each occasion.
3. Learning from Significant Events and Internal Reviews
We accept that, immediately after Myles’ death in April 2023, our internal
review processes were not as rigorous or structured as they should have
been. While reflection occurred, the depth and documentation of this initial
review did not fully meet expected governance standards.
Summary of actions undertaken:
a) Conducted two Practice Protected Time (PPT) sessions in June and
October 2023 focusing on clinical decision-making, triage, and prevention.
b) Held two further Significant Event Analyses (SEAs) in April and July 2025
to review the case and coroner’s findings.
c) All clinical staff participated;
acknowledged
Myles should have been referred to secondary care between 16 – 20
March 2023 and that the failure to do so made a direct contribution to his
death.
d) Enhanced policies and processes for incident reviews now include clearer
documentation, minutes, and explicit learning outcomes.
e) Promoted an open culture of reporting, reflection, and continuous learning.
f) Updated the Practice Significant Event Policy, accessible on Microsoft
Teams and in hard copy with signed staff acknowledgements, is being
aligned with the NHS England Patient Safety Incident Response
Framework (PSIRF) and the Primary Care Patient Safety Strategy for GP
practices.
g) Bimonthly PPT meetings regularly incorporate SEA discussions and policy
review to reinforce staff understanding.
Going forward, the Practice will schedule quarterly Learning from Events
meetings to review SEAs and share learning from both internal and external
cases to promote shared learning. The first quarterly meeting is scheduled for
January 2026.This will be in line with the Primary care patient safety strategy
and Learning from Patient Safety Events (LFPSE).
This comprehensive approach ensures thorough investigation, learning, and
sustained improvements in patient safety.
4. Support from System Partners and Collaborative Networks
As a GP practice in Kirklees we:
a) Benefit from the Strategic Health Facilitator for Kirklees Adult Learning
Disability (SWYPFT), providing training and support across local GP
practices.
b) Utilise Kirklees Get Checked Out resources and LD-friendly template
letters uploaded in SystmOne for consistent communication.
c) Following migration to SystmOne, collaborated with the ICB Data Quality
team to verify and ensure accurate coding of patients with LD and Autism.
d) Participate in the Tolson Primary Care Network’s ‘Mondays at the
Museum’ Creative Health initiative, promoting wellbeing activities in a
stigma-free environment, actively encouraging patients with LD and
Autism to engage.
Dalton Surgery has taken robust and sustained action in response to the Regulation
28 report. We have strengthened clinical processes, embedded new policies,
enhanced training, and fostered a culture of transparency and continuous
improvement.
We trust this response and the enclosed action plan demonstrate the significant
steps we have already taken and that you are assured of our commitment to
delivering safe, inclusive, and accountable care. We would be happy to provide any
further information or supporting documentation as required.
Yours sincerely,
GP Partners
Enc: Action Plan
Cc:
Medical Director, NHS England (Yorkshire and the Humber)
Medical Director, West Yorkshire Integrated Care Board
, Accountable Officer – Kirklees, WYICB
, Director of Primary Care, WYICB
, Primary and Community Care Inspector, CQC
, Head of Clinical Quality, NHS England – NE and Yorkshire
Mr Crispin Oliver
HM Assistant Coroner
West Yorkshire (Western) Coroner Area
HM Coroner’s Court
Cater Building
1 Cater Street
Bradford
BD1 5AS
National Medical Director
NHS England
Wellington House
133-155 Waterloo Road
London
SE1 8UG
2 September 2025
Dear Mr Oliver,
Re: Regulation 28 Report to Prevent Future Deaths – Myles Edward Scriven
who died on 16 April 2023.
Thank you for your Report to Prevent Future Deaths (hereafter “Report”) dated 14 July
2025 concerning the death of Myles Edward Scriven on 16 April 2023. In advance of
responding to the specific concerns raised in your Report, I would like to express my
deep condolences to Myles’ family and loved ones. NHS England is keen to assure
the family and yourself that the concerns raised about Myles’ care have been listened
to and reflected upon.
Your Report raises concerns that Myles’ GP surgery were ignorant of the regulatory
requirements and reasonable adjustments required for Myles in light of his learning
disability and autism, that they failed to record numeric observations properly, and that
they failed to undertake a detailed and rigorous internal review for learning purposes
following Myles’ death.
Learning disability information
A learning disability is defined by the Department of Health and Social Care (DHSC)
(2001) as a significantly reduced ability to understand new or complex information, to
learn new skills (impaired intelligence), with a reduced ability to cope independently
(impaired social functioning), which started before adulthood.
A learning disability is different for everyone. The degree of disability can vary greatly,
being classified as mild, moderate, severe, or profound. In all cases, a learning
disability is a lifelong condition and cannot be cured.
A learning disability is different to a learning difficulty, which is a reduced ability for a
specific form of learning and includes conditions such as dyslexia (reading), dyspraxia
(affecting physical co-ordination), and attention deficit hyperactivity disorder (ADHD).
A person with a learning disability may also have one or more learning difficulties.
Training requirements
Under the Health and Care Act 2022, since 1 July 2022, Care Quality Commission
(CQC) registered providers have been required to ensure that their staff, including
GPs, receive specific training on learning disability and autism appropriate to their role.
On 19 June 2025, NHS England published a Code of Practice which sets out
expectations for training content and delivery. This training helps to ensure that staff
have the right knowledge and skills to provide safe and informed care.
To support this, we have been rolling out the Oliver McGowan Mandatory Training on
Learning Disability and Autism to the health and adult social care workforce. The
training includes content on understanding learning disability and autism, frequently
co-occurring conditions, reasonable adjustments, and reflection on own attitudes and
professional behaviour. Over 3 million people have completed the e-learning package
which is the first part of Oliver’s Training, and is freely available on the Elearning for
Health Hub.
Health checks and reasonable adjustments
NHS England is working with the Royal College of GPs and other stakeholders to
improve the quality of annual health checks for people with a learning disability and
will be publishing a framework for annual health checks in coming months.
In providing the learning disability health check scheme, GP practices are encouraged
to provide a more proactive and coordinated approach to care, improving liaison with
carers and secondary care, and developing a health action plan with individual patients
in response to their needs.
The Equality Act 2010 places a legal duty on health and care services to make
changes to their approach or provision to ensure services are as accessible for people
with disabilities as they are for everyone else. NHS England has introduced the
reasonable adjustment digital flag to enable health and care services to record, share
and view details of the reasonable adjustments a person needs to support their care.
Organisations are required to use their own systems and processes to record
reasonable adjustment needs, and staff e-learning training has been rolled out for all
health and care staff to support this.
Accurate recording
The GP contract requires that accurate patient records are maintained, including for
patients with a learning disability. The Learning Disabilities Health Check Scheme
continues to be offered via the Direct Enhanced Services Directions, to encourage the
maintenance and updating of learning disability registers and the completion of annual
health checks and health action plans for each registered patient aged 14 years and
over on the learning disabilities register. The Investment and Impact Fund continues
to directly incentivise delivery of annual health checks and health action plans.
NHS England has also produced guidance for general practice on Improving
identification of people with a learning disability.
ICB contract management of GP practices
Integrated Care Board (ICBs) are responsible for the commissioning and contract
management of GP practices. ICBs will undertake intelligence led and routine
contractual reviews based on a combination of national and local data sources,
alongside other soft intelligence, and practice visits to identify practice variation and
improvement needs. NHS England publishes guidance for ICBs, which includes an
assurance framework for contractual reviews.
As part of these reviews, NHS England would expect ICBs to ensure GP practices
have processes in place for learning from patient safety events. The national GP
contract has introduced new requirements in 2025/26 to ensure practices have regard
to the primary care patient safety strategy published in September 2024, and are
registered with the learn from patient safety events service (LFPSE) for the purposes
of:
•
recording patient safety events at the practice about the services delivered by
the practice, thereby contributing to the national NHS-wide data source to
support learning, improvement and learning culture.
• enabling the practice to record patient safety events occurring in other health
care settings (for instance if a GP practice wished to record an unsafe discharge
from hospital).
individuals recording patient safety events being able to download a copy of the
record for purposes of supporting appraisal and revalidation.
•
GP practices are now required to declare annually their compliance which, alongside
data from the LFPSE, will support the ICB contractual review processes described.
Regional learning and improvements
My regional clinical quality colleagues for the North East and Yorkshire region have
also been engaging with NHS West Yorkshire Integrated Care Board on the concerns
raised in your Report.
The ICB is undertaking a LeDeR review to understand what local learning can be taken
from this tragic death and will implement actions at a local level because of their
findings.
NHS England is advised by the ICB that the GP surgery involved in Myles’ care has
taken learnings from Myles’ death. These include:
•
Improved processes for the management of patients with learning disabilities
and autism, to include all staff completing the Oliver McGowan training and
adopting a low threshold for offering face-to-face reviews for patients with
learning disabilities.
• Reminding clinical staff of the importance of accurate documentation for clinical
decision-making, safety netting and continuity of care, which will be monitored
through protocols and audits.
• Undertaking Practice Protected Time meetings and Significant Event Analyses
(SEAs) to discuss Myles’ care and lessons learned (early triage of breathless
patients, same day face-to-face review of patients, etc.)
We refer the Coroner to the GP surgery’s response to you for further information.
I would also like to provide further assurances on the national NHS England work
taking place around the Reports to Prevent Future Deaths. All reports received are
discussed by the Regulation 28 Working Group, comprising Regional Medical
Directors, and other clinical and quality colleagues from across the regions. This
ensures that key learnings and insights around events, such as the sad death of Myles,
are shared across the NHS at both a national and regional level and helps us to pay
close attention to any emerging trends that may require further review and action.
Thank you for bringing these important patient safety issues to my attention and please
do not hesitate to contact me should you need any further information.
Yours sincerely,
National Medical Director
NHS England
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