Prevention of Future Deaths reports · 2019

Hazel Lewis

Regulation 28 report to prevent future deaths, reference 2019-0377, written 6 Nov 2019. A coroner writes one of these when an inquest reveals a risk that could cause further deaths unless something changes.

Date of report6 Nov 2019
Reference2019-0377
DeceasedHazel Lewis
CoronerCatherine McKenna
Coroner areaManchester North
CategoryHospital Death (Clinical Procedures and medical management) related deaths
Organisation namedPennine Care NHS Foundation Trust
Sourcejudiciary.uk record · original PDF
Responses publishednone published

The report

Text recovered by OCR from a scanned PDF. OCR is imperfect: check anything you rely on against the source PDF. Reproduced verbatim, including the scan's own layout.

REGULATION 28: REPORT TO PREVENT FUTURE DEATHS (1}

REGULATION 28 REPORT TO PREVENT FUTURE DEATHS
THIS REPORT IS BEING SENT TO:

1. Heywood Health

2. Advocacy Together

3. Pennine Care NHS Foundation Trust

4. Rochdale Adult Care

4 CORONER
| am Catherine McKenna, Area Coroner for the Coroner area of Manchester North
2 CORONER’S LEGAL POWERS

| make this report under paragraph 7, Schedule 5, of the Coroner's and Justice Act 2009 and
Regulations 28 and 29 of the Coroners (Investigations) Regulations 2013

INVESTIGATION and INQUEST

On the 7 December 2018, | commenced an investigation into the death of Hazel Maureen Lewis.
The inquest concluded on 4 November 2019. The medical cause of death is 1a) metastatic cancer
of the breast 2) left fractured neck of femur (conservative management). The Conclusion was
‘Natural Causes to which an injury sustained as a result of an unwitnessed fall contributed.’

CIRCUMSTANCES OF DEATH

Hazel Lewis had learning and communication difficulties and a long history of declining medical
investigations and social support. In January 2016, she was noted to have a lump suggestive of
breast cancer and declined investigations. She was deemed to have the requisite mental capacity
to decline investigations at that time.

On 30 May 2017, Ms Lewis’s long-term partner died. Her package of social care support was
increased and whilst initially resistant, Ms Lewis was able to fully engage with the care package
and carers. She was referred to her GP in relation to the breast lump. On 10 July 2017, the GP
undertook a home visit jointly with a Care Act Advocate. Ms Lewis was assessed as lacking
capacity to make decisions in relation to investigations into the breast lump. A best interest
decision was made by the GP not to proceed with investigations, prior to consultation with the
social worker or community learning disabilities nurse. When the social worker and community
learning disabilities nurse were spoken to about the best interest decision, neither of them
appreciated that they were being consulted for the purpose of best interest decision-making.
Options as to whether it might be possible to encourage Ms Lewis to engage with medical
investigations were not explored. Ms Lewis had no family or friends to consult with and an
Independent Mental Capacity Act Advocate was not formally instructed as part of the best interest
decision-making process. |

On 14 November 2018, Ms Lewis was found on the floor at her home address by carers. She had }
sustained a hip fracture as a result of an unwitnessed fall. She was taken to the Royal Oldham |
Hospital where she was managed conservatively and died at 16:14 hours on 28 November 2018. /
Whilst the hip fracture significantly contributed to her death, the cause of death was metastatic
cancer of the breast.

CORONER’S CONCERNS

During the course of the inquest the evidence revealed matters giving rise to concern. In my
opinion there is a risk that future deaths will occur unless action is taken. In the circumstances it is
my statutory duty to report to you.

The MATTERS OF CONCERN are as follows:-

For all recipients

Whilst evidence was given that all witnesses had undergone mandatory Mental Capacity Act 2005
(MCA) training, the Court was left with some concerns about the adequacy of that training as it
relates to decisions concerning life-sustaining treatment.

It would appear that those involved in the Deceased’s care did not fully understand the order in
which steps are to be taken under the MCA, the nature of consultation and the role of consultees,
when an iMCA is to be instructed and the need to explore all available options before a best
interest decision is reached.

The best interest decision not to proceed with investigations in this case was taken prior to
consultation with those involved in the Deceased’s care. Neither the social worker or community
learning disability nurse appreciated that they were being consulted when spoken to by the GP.
The carers who provided daily care to the Deceased and who had been able to foster her
engagement with social care were not consulted. An IMCA was not formally instructed. There was
no exploration of or advice given in relation to the options available to support the Deceased in
engaging with medical investigations or medical care such as desensitisation or 1:1 care. The
community learning disability nurse’s understanding was that the Deceased had the capacity to
decline investigations. A best interest meeting was not convened and whilst this was not
mandatory under these circumstances, it would have afforded an opportunity to ensure that
agencies applied their minds to the possibility that the Deceased may engage with investigations if
additional support was offered. It would also have facilitated more effective communication
between the agencies and on-going management of the consequences of the best interest
decision.

For Advocacy Together

The statutory advocate involved in the Deceased’s care was acting as a Care Act Advocate rather
than an IMCA. | heard evidence that in order for the advocate to act as an IMCA, a separate
referral to Advocacy Together would be required. Both the GP and social worker had understood
that the advocate involved in the Deceased’s case was acting as an IMCA. There is a need for
greater clarity as to which role an advocate is acting so that all agencies involved in the care of
individuals lacking capacity can ensure that the requirements of the MCA are complied with.

ACTION SHOULD BE TAKEN

In my opinion action should be taken to prevent future deaths and | believe each of you
respectively have the power to take such action.

YOUR RESPONSE

You are under a duty to respond to this report within 56 days of the date of this report, namely
6 January 2020. |, the Coroner, may extend the period.

Your response must contain details of action taken or proposed to be taken, setting out the
timetable for action. Otherwise you must explain why no action is proposed.

COPIES and PUBLICATION

| have sent a copy of my report to the Chief Coroner and to the following Interested Persons
namely:-

| have also sent a copy of my report to Greater Manchester LeDeR steering group who may find it
of interest.

lam also under a duty to send the Chief Coroner a copy of your response.

The Chief Coroner may publish either or both in a complete or redacted or summary from. He may
send a copy of this report to any person who he believes may find it usefulor of interest. You may
make representations to me the coroner at the time of your response, about the release or the
publication of your response by the Chief Coroner.

b Mvenbe/ Jo\4 Signed:

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