Prevention of Future Deaths reports · 2024
Regulation 28 report to prevent future deaths, reference 2024-0464, written 20 Aug 2024. A coroner writes one of these when an inquest reveals a risk that could cause further deaths unless something changes.
| Date of report | 20 Aug 2024 |
|---|---|
| Reference | 2024-0464 |
| Deceased | Hannah Jacobs |
| Coroner | Shirley Radcliffe |
| Coroner area | East London |
| Category | Child Death (from 2015) |
| Source | judiciary.uk record · original PDF |
| Responses published | 6 |
Text extracted from the PDF text layer. Reproduced verbatim, including the scan's own layout.
DR SHIRTEY RADCTIFFE ASSISTANT CORONER EAST TONDON East London Coroner's Court, Queens Road Walthamstow, E17 8QP Telephone Email REGULATION 28: REPORT TO PREVENT FUTURE DEATHS (1) Ref: REGULATION 28 REPORT TO PREVENT FUTURE DEATHS THIS REPORT IS BEING SENT TO: Sent via email: , National Medical Director, NHS England , Chief Executive Office, Royal College of Paediatrics Sent via email : Sent via email: , President of Royal College of Physicians 1. 2. 3. 4. British Society for Allergy & Glinical lmmunology Sent via email: 5. 6. , Chief Executive Officer General Dental Gouncil Sent via email: Council Sent via email : , Ghief Executive & Registrar, Pharmaceutical 1 CORONER I am Dr Shirley Radcliffe assistant coroner, for the coroner area of East London 2 CORONER'S LEGAL POWERS I make this report under paragraph 7, Schedule 5, of the Coroners and Justice Act 2009 and Regulations 28 and 29 of the Coroners (lnvestigations) Regulations 2013. http://www. leeislation.eov. uk/u kpea/2009/25lsched ule/5/pa raera ph/7 1 http ://www. leeislation.eov. u k/u ksi/2013/1629/pa rtl7/made 3 INVESTIGATION and INQUEST On 17th June 2023 I commenced an investigation into the death of Miss Hannah Eniola Angela Ayomipo Jacobs aged '13 years. The investigation concluded at the end of the inquest on 'l 6th August 2024. f he conclusion of the inquest was a narrative: On 8th February 2023 Hannah was served a dairy hot chocolate at Costa Coffee Barking despite her mother informing staff of a dairy allergy. Neither she nor her mother were carrying an Adrenaline Auto lnjector which had been prescribed. Next, they went to the dentist where Hannah took some sips of her drink and developed symptoms of excessive saliva. During the brief time they were at the dental surgery it was not recognised that this was the beginning of an anaphylactic reaction. Hannah and her mother rushed to the Day Night Pharmacy where Hannah collapsed. LAS attended promptly, began resuscitation, and took her to Newham University Hospital where she was pronounced'dead the same day. 4 CIRCUMSTANCES OF THE DEATH a Hannah was 13 with severe allergíes to eggs, dairy and wheat. She was going to the dentist before school. Her mother was told she couldn't take her prescribed Epi-pen into school as she was to keep 2 at home and 2 at school. Hannah's mother was not carrying an Epi-pen either. They went into Costa Coffee on the way to the dentist where they were incorrectly served dairy hot chocolates. This was due to a failure of communication and a faílure to follow the correct allergy process in Costa Coffee. They then went into the dentist and Hannah took a sip of her drink and felt unwell. She went into the dentist's room spitting out fluid which the dentist believed to be her drink combined with saliva. Hannah refused treatment and left the dentist with her mother to go to a local pharmacy for treatment. Her mother noticed Hannah's lips were swollen and asked for cetirizine from the pharmacist. Then she asked for an Epi-pen but due to a national shortage there was only one in stock, a 'lSOmicrgrams rather than the 500 Hannah had be prescribed. This was given but sadly Hannah went in to cardiac arrest and could not be resuscitated. 5 CORONER'S CONCERNS During the course of the inquest the evidence revealed matters giving rise to concern. ln my opinion there is a risk that future deaths could occur unless action is taken. ln the circumstances it is my statutory duty to report to you. The MATTERS OF CONCERN are as follows. - a a The evidence at the inquest referred to allergy action plans discussed in the healthcare settings and given to parents and patients. Hannah displayed what appeared to be excessive salivation at the dentist which her paediatric consultant (who gave evidence) said, with the benefit of hindsight was actually a manifestation of her inability to swallow. This is a sign of anaphylaxis This was not recognised by dental staff as an inability to swallow and thus of anaphylaxis. The other symptom Hannah demonstrated was swelling of her lips which is listed on allergy plans as a mild to moderate symptom and thus provided a false sense of reassurance to her mother that cetirizine was what she needed. 2 a a The risk of future deaths in the context of anaphylaxis remains in the absence of further consideration of what constitutes an anaphylactic reaction as opposed a mild reaction, and the education of parents and patients of the safety of using AAls (adrenaline auto injectors) lF lN DOUBT. I was made aware there had been a shortage of AAI at the time but a vial of adrenaline was available at the chemist. However, it takes time to draw up. I am not sure if (assuming no national shortage) all chemists have AAI in stock for emergencies. ACTION SHOULD BE TAKEN ln my opinion action should be taken to prevent future deaths and I believe you IAND/OR your organisation] have the power to take such action. 7 YOUR RESPONSE You are under a duty to respond to this report withÍn 56 days of the date of this report, namely by lSth October 2024.1, the coroner, may extend the period. Your response must contain details of action taken or proposed to be taken, setting out the timetable for action. Othen¡¡ise you must explain why no action is proposed. 8 COPIES and PUBLIGATION I have sent a copy of my report to the Chief Coroner and to the following lnterested Persons Hannah's family, FSA, Costa Coffee, SBR Trading Royal Free NHS Trust, LBBD, to the Child Death Overview Panel (CDOP) (where the deceased was under 18). I have also sent it to the local Director of Public Health who may find it useful or of interest. I am also under a duty to send a copy of your response to the Chief Coroner and all interested persons who in my opinion should receive it. I may also send a copy of your response to any other person who I believe may find it useful or of interest. The Chief Coroner may publish either or both in a complete or redacted or summary form. He may send a copy of this report to any person who he believes may find it useful or of interest. You may make representations to me, the coroner, at the time of your response, about the release or the publication of your response. lDATEl20th August 2024 [SlcNED BY CORONER] Ç(u ^,ulk a J
6 responses published against this report on judiciary.uk. A response is a body's written reply to the coroner's concerns; publication is at the discretion of the Chief Coroner's office, so an absent response does not mean nobody replied.
Dr Shirley Radcliffe Assistant Coroner East London Coroner’s Court Queens Road Walthamstow London E17 8QP Friday 4th October, 2024 Dear Dr Radcliffe, Regulation 28 Report concerning Ms Hannah Eniola Angela Ayomipo Jacobs Thank you for letter dated 21st August 2024 in which you asked The British Society for Allergy & Clinical Immunology (BSACI) to provide a response to the Regulation 28 Report to Prevent Future Deaths following the inquest into the tragic death of Hannah Eniola Angela Ayomipo Jacobs. The British Society for Allergy and Clinical Immunology (BSACI) is the national, professional and academic society which represents the specialty of allergy at all levels. Its aim is to improve the management of allergies and related diseases of the immune system in the United Kingdom, through education, training and research. We wish to respond to all matters which fall under our remit. Concern 1 “The evidence at the inquest referred to allergy action plans discussed in the healthcare settings and given to parents and patients. Hannah displayed what appeared to be excessive salivation at the dentist which her paediatric consultant (who gave evidence) said, with the benefit of hindsight was actually a manifestation of her inability to swallow. This is a sign of anaphylaxis. This was not recognised by dental staff as an inability to swallow and thus of anaphylaxis.” The BSACI Allergy Action Plans do state that difficulty swallowing is a manifestation of anaphylaxis. These plans were developed with allergy healthcare professionals and patient representatives. The BSACI is developing an online allergy education platform for all healthcare professionals and non-healthcare professionals which will include anaphylaxis. This will include the signs and symptoms and management approach for mild, moderate and severe allergic reactions. This will be rolled out extensively to a wide range of stakeholders. We would welcome the involvement of healthcare professionals across tertiary, secondary and primary care (e.g. Royal College of General Practitioners, Royal College of Nursing) in this activity, and healthcare leadership (e.g. NHS England, devolved nations heath boards, Integrated Care Boards). Concern 2 “The other symptom Hannah demonstrated was swelling of her lips which is listed on allergy plans as a mild to moderate symptom and thus provided a false sense of reassurance to her mother that cetirizine was what she needed.” A18 BSACI Allergy Action Plans do state that reactions may progress from mild to moderate to anaphylaxis. Healthcare professionals managing patients with food allergies advise patients and their carers to always carry two adrenaline autoinjectors with them at all times. This is also the advice of the MHRA. This would include on the way to and from school. The BSACI education programme being developed aims to target all those who may have responsibility for people living with the risk of anaphylaxis, including school staff. Concern 3 “The risk of future deaths in the context of anaphylaxis remains in the absence of further consideration of what constitutes an anaphylactic reaction as opposed a mild reaction, and the education of parents and patients of the safety of using AAls (adrenaline auto injectors) lF lN DOUBT.” The BSACI Allergy Action Plans have two boxes that clearly list the symptoms and signs of firstly a mild or moderate reaction and secondly anaphylaxis. These were developed with a wide range of healthcare professionals and patient groups. Additionally, plans state “if in doubt, give adrenaline”. As mentioned BSACI are developing an online allergy education platform for all healthcare professionals and non-healthcare professionals, which will include anaphylaxis, specifically its recognition and management. This will be rolled out extensively to a wide range of stakeholders. BSACI has collaborated with patient organisations to develop guidelines and information leaflets. This includes an Anaphylaxis patient information leaflet which can be viewed here. This clearly states the signs and symptoms of anaphylaxis and is accessible to all patients. Concern 4 “I was made aware there had been a shortage of AAI at the time, but a vial of adrenaline was available at the chemist. However, it takes time to draw up. I am not sure if (assuming no national shortage) all chemists have AAI in stock for emergencies.” BSACI is unable to comment on this point. We trust that this letter addresses the concerns that have been raised in your report, however, please do contact us should you require any further information. Your sincerely, President – British Society for Allergy & Clinical Immunology A19
ggdc gdc-uk.org BY EMAIL: East London Coroner's Court, Queens Road, Walthamstow, E17 8QP 14 October 2024 Dear Dr Radcliffe, RE: Regulation 28 Report to Prevent Future Deaths Report I write in response to your Regulation 28 Report to Prevent Future Deaths (the Report) dated 20 August 2024 in respect of the inquest into the death of Miss Hannah Eniola Angela Ayomipo Jacobs. This is a tragic case, and it is the great sadness that I learnt of Hannah’s death. I extend my sincere condolences to Hannah’s family and loved ones. I note that you have expressed concern in relation to the circumstances that arose when Hannah attended at a dental surgery on 8 February 2023. Hannah began to show symptoms of excessive salivation in the dentist’s room, which, in hindsight, was not recognised by dental staff as the early symptoms of an anaphylactic reaction brought on by an inability to swallow. Hannah refused treatment and was rushed to the pharmacist by her mother. I have carefully considered the standards that we set and guidance that the General Dental Council (GDC) provides for the dental team as relevant to these events, and whether further or different standards or guidance are required or whether there is any further action which the GDC should consider. The Role of the GDC The GDC is the UK-wide statutory regulator of dentists and dental care professionals. Our overarching objective is the protection of the public. To achieve this, we register qualified dental professionals, quality assure the standards of dental education, set standards and issue guidance for the dental team and investigate complaints about dental professionals' fitness to practise. Although we have some regulatory responsibility for how businesses that practise dentistry is constituted, dental premises are regulated by the Care Quality Commission. The GDC sets standards and issues guidance that are relevant to how dentists are prepared for and respond to medical emergencies when they arise. The GDC also endorse the standards and guidance set by other organisations that are applicable to dental professionals. The framework of standards and guidance that is applicable to the events that took place on 8 February 2023 is set out below. 37 Wimpole Street London W1G 8DQ A10 ggdc gdc-uk.org GDC standards and requirements The GDC sets requirements, Preparing for Practice, for the learning outcomes which UK training courses must achieve where the resulting qualification is the basis for allowing people to register as dental professionals. It sets a general requirement that “Students must be trained in accordance with appropriate requirements in relation to dealing with medical emergencies.” There is also a specific requirement for each of the dental professional groups, with dentists require to be able to “identify, assess and manage medical emergencies.” The GDC also set standards for registered dental professionals, Standards for the Dental Team. These are standards that set out the conduct, performance and ethics that are expected of the dental team. The following standards are relevant to how dentists are prepared for and respond to medical emergencies. Standard 1.5 sets out “You must treat patients in a hygienic and safe environment” and requires the dental team to follow the guidance on medical emergencies and training updates issued by the Resuscitation Council (UK) (Standard 1.5.3). Standard 7.1 obliges dental professionals to provide good quality care based on current evidence and authoritative guidance, including an obligation to find out about current evidence and best practice that affects their work, premises, equipment and business and follow them (Standard 7.1.1). This standard also obliges dental professionals who have not followed established practice and guidance to explain why (Standard 7.1.2). The effect of the Standards The effect of Standard 1.5 is that members of the dental team are obliged to follow the Resuscitation Council UK guidance on medical emergencies and training updates (the RCG). If they do not, and a concern was raised with the GDC, this might result in regulatory proceedings to examine their fitness to practise dentistry. Any concerns raised with the GDC are considered carefully in accordance with our Fitness to Practise Rules and regulatory framework. The RCG sets out the quality standards that apply to healthcare organisations. This includes an obligation to provide a high-quality resuscitation service and ensure that staff are trained and updated regularly to a level of proficiency appropriate to everyone’s expected role. The RCG includes a list of primary care equipment that must be available. The list includes adrenaline. The GDC also provides further guidance to registrants on our website which is linked here. This page provides a link to the RCG and additionally sets out an obligation on all registrants that they must be trained in dealing with medical emergencies and possess up to date evidence of capability within the scope of their role. As part of the guidance, we signpost further guidance provided by the National Institute for Health and Care Excellence (NICE) for dental professionals. This includes a list of medication that must be included in an emergency drugs kit in a dental practice set out in the British National Formulary. This list contains adrenaline/epinephrine. NICE also provides guidance to dental professionals on the management of common medical emergencies. 37 Wimpole Street London W1G 8DQ A11 ggdc gdc-uk.org There is specific guidance from NICE regarding how dental professionals should deal with anaphylactic reactions. It provides information about how anaphylactic reactions may arise, outlines that they may be associated with additives and excipients in food and lists the common symptoms and signs of anaphylaxis. The list of symptoms does not, however, include excessive salivation. This was the symptom displayed by Hannah on the premises. The guidance goes on to inform dental professionals that the first line treatment for anaphylaxis is the administration of intramuscular adrenaline/epinephrine. The effect of Standard 7.1 is that dental professionals are obliged by the GDC to provide good quality care based on current evidence and authoritative guidance and follow best practice or explain why they have not done so, if required. Current guidance includes the NICE guidelines which are specifically referenced within the GDC guidance on our website, as set out above. In addition, the GDC recommends that dental professionals complete at least 10 hours of continuing professional development in relation to medical emergencies, in each five-year CPD cycle and at least two hours of this type of activity every year. Other Standards The Care Quality Commission (CQC) regulates dental premises, and the Health and Social Care Act 2008 (Regulated Activities) Regulations 2014 are applicable. The CQC requires that a provider must have arrangements in place to take appropriate action if there is a medical emergency (Regulation 12(2)(b)) and that providers must have sufficient medication available in case of emergencies (Regulation 12(2)(f)). Further action I have carefully considered the applicable guidance and standards and whether different or additional guidance or standards are required. The current framework of standards and guidance sets out clear obligations for dental professionals to have appropriate training and keep medication on their premises to use in the event of a medical emergency. I think that it is appropriate to continue to require adherence to the RCG as set out at Standard 1.5 and other appropriate guidance, including the NICE guidance as set out in Standard 7.1. Whilst I note your concern that dental professionals did not recognise the early symptoms of anaphylaxis, I also note that the symptom of excessive salivation is not listed as a potential symptom in the NICE guidance. We will write to NICE to highlight this, and to ask them to consider reviewing the listed symptoms of anaphylaxis and their guidance to dental professionals more broadly. We are currently in the process of reviewing our CPD requirements, and we will consider whether we should propose changes to the recommendations regarding medical emergencies as part of the review. The review is expected to conclude in 2025, but some potential changes would require legislative changes, the timing of which is not under our control. 37 Wimpole Street London W1G 8DQ A12 ggdc gdc-uk.org Should you require any further information in respect of the role of the GDC, our Standards, requirements for Continuing Professional Development or our Fitness to Practise processes, please do not hesitate to contact me. Yours faithfully, Chief Executive & Registrar 37 Wimpole Street London W1G 8DQ A13
Dr Shirley Radcliffe Assistant Coroner for the coroner area of East London By email via: 15 October 2024 Dear Dr Radcliffe Re: In the matter of Hannah Eniola Angela Ayomipo Jacobs (ref: 21836270) Thank you for sending us the two Regulation 28 reports regarding the death of Hannah Eniola Angela Ayomipo Jacobs. We are very sorry to hear about this sad death and we would like to pass on our sincere condolences to Hannah’s family. By way of background, the GPhC is the independent regulator for pharmacists, pharmacy technicians and pharmacies in Great Britain. Our main job is to protect, promote and maintain the health, safety and wellbeing of members of the public by upholding standards and public trust in pharmacy. This includes maintaining a register of pharmacy professionals and premises, setting regulatory standards and investigating concerns. We are aware of ongoing and intermittent supply issues with adrenaline autoinjectors (AAIs) which have been lasting for several years. While we do not have a direct role in the manufacturing of medicines or wider issues such as supply and shortages, we understand that medicines shortages can cause problems for patients, carers and those supporting people living with life-threatening allergies requiring adrenaline. We know that pharmacy professionals are also concerned and having to use their professional judgement and make decisions in challenging situations, balancing a range of factors such as individual patient needs and available supplies of medicines. Our standards require pharmacy professionals to deliver patient-centred care, which includes making the care of the patient their first concern and using their judgement to make professional decisions. This may include making decisions about providing medication in an emergency. pharmacyregulation.org | info@pharmacyregulation.org |020 3713 8000 A1 There are no requirements for registered pharmacies to routinely stock AAI’s unless they are providing services which specifically require adrenaline to be available in case the patient suffers an anaphylaxis reaction. An example would be the seasonal influenza vaccination service. For such services the adrenaline does not have to be available as an AAI and can be kept in other medicinal forms such as ampoules for injections. Specific enquiries about the availability of particular medicines, can be directed to the medicines supply team at the Department of Health and Social Care (DHSC) on manufacturers and wholesalers, they would be best placed to help answer any questions you may have regarding the availability of medicines. . Alongside Additionally there are other supportive resources available, such as the guidance and resources for safe use of adrenaline auto-injectors produced by Medicines Healthcare products and Regulatory Agency (MHRA). This contains advice for healthcare professionals and advice for them to provide to patients and their carers on safe usage of AAIs. We hope this information is helpful. If you should require any further information, please do not hesitate to contact me. Finally, I would like to extend an invitation to Hannah’s family to meet with me and our Chief Pharmacy Officer, contact details. , if that would be helpful in any way. Please do pass on our invitation and share my Yours sincerely, Chief Executive and Registrar A2
Dr Shirley Radcliffe
Assistant Coroner
East London Coroner’s Court
Queens Road
Walthamstow
London
E17 8QP
National Medical Director
NHS England
Wellington House
133-155 Waterloo Road
London
SE1 8UG
14 October 2024
Dear Coroner,
Re: Regulation 28 Report to Prevent Future Deaths – Hannah Eniola Angela
Ayomipo Jacobs who died on 8 February 2023
Thank you for your Report to Prevent Future Deaths (hereafter “Report”) dated 20
August 2024 concerning the death of Hannah Eniola Angela Ayomipo Jacobs on 8
February 2023. In advance of responding to the specific concerns raised in your
Report, I would like to express my deep condolences to Hannah’s family and loved
ones. NHS England are keen to assure the family and the coroner that the concerns
raised about Hannah’s care have been listened to and reflected upon.
I respond to each of the concerns raised in your Report below.
1. The evidence at the inquest referred to allergy action plans discussed in the
healthcare settings and given to parents and patients. Hannah displayed what
appeared to be excessive salivation at the dentist which her paediatric
consultant (who gave evidence) said, with the benefit of hindsight was a
manifestation of her inability to swallow. This is a sign of anaphylaxis. This
was not recognised by dental staff as an inability to swallow and thus of
anaphylaxis.
Saliva secretion is dependent on autonomic nerve signals, which are stimulated by the
smell, taste, and chewing of food. In this tragic case it could be reasonable to assume
that Hannah had hypersalivation in response to her chocolate drink and that her
distress would also alter her salivary rate.
The Resuscitation Council, the UK’s national expert in resuscitation and the
organisation whose guidelines form the basis of anaphylaxis management in the UK,
do not list excess salivation as a sign or symptom of anaphylaxis. It is therefore not
unreasonable that the dentist or dental team did not assume early anaphylaxis from
hypersalivation.
2. The other symptom Hannah demonstrated was swelling of her lips which is
listed on allergy plans as a mild to moderate symptom and thus provided a
false sense of reassurance to her mother that cetirizine was what she needed.
The allergy plans from the British Society of Allergy and Clinical Immunology (BSACI),
a national academic society whose core aim is to improve allergy care by providing
allergy resources for healthcare professionals, including clinical guidelines and
educational meetings, states that reactions may progress from mild and moderate
symptoms to anaphylaxis. This is also explicitly stated in the Resuscitation Council UK
Guideline for healthcare practitioners. It is expected that clinicians make this clear
when discussing the plans with families of children with severe allergies.
Action plans also advise not to stand up a child in the case of a severe reaction and
make clear to use adrenaline, whenever in doubt as to the severity of a reaction.
Standard teaching practice accompanying these plans is that where there is
uncertainty, the default should be to use the adrenaline auto-injectors (AAI). This is
also supported by guidance from the Medicines and Healthcare Products Regulatory
Authority (MHRA).
3. The risk of future deaths in the context of anaphylaxis remains in the absence
of further consideration of what constitutes an anaphylactic reaction as
opposed to a mild reaction, and the education of parents and patients of the
safety of using AAls (adrenaline auto injectors) if in doubt.
Significant stakeholder consultation, including with patients of all ages (including
children), their families, schoolteachers and other lay individuals informed the
Resuscitation Council UK Guideline and the BSACI plans guidance on what may be
considered as possible indications of anaphylaxis, and the ‘if in doubt’ message to use
AAI wherever there might be uncertainty.
Any additions to the plan must be carefully balanced with the existing messaging to
ensure there is no risk of detracting from the key headline symptoms and the ‘if in
doubt’ message.
4. There was shortage of AAI at the time but a vial of adrenaline was available
at the chemist. However, it takes time to draw up. I am not sure if (assuming
no national shortage) all chemists have AAI in stock for emergencies.
The shortage of AAI has been resolved. At the time Hannah went into anaphylaxis,
there was a shortage of Jext and a recall of Emerade, both of which are AAIs.
My Patient Safety colleagues in North East London have confirmed that community
pharmacies were notified of the shortage of Jext, however they have not been able to
confirm if the same message was sent to all GPs. They are therefore currently
reviewing their communications approach to alerting GP practices. The Pharmacy and
Medicines Optimisation Team do include updates from the MHRA in their newsletters
along with a link to Medicines Supply Tool – SPS - Specialist Pharmacy Service – The
first stop for professional medicines advice and this provides information on national
shortages and how to manage them.
The Pharmacy and Medicines Optimisation Team have been reviewing the use of AAIs
and their supply. The detail of this work is still being finalised but my regional
colleagues in London have been asked to ensure the national team are provided with
updates on this work.
I would also like to provide further assurances on national NHS England work taking
place around the Reports to Prevent Future Deaths. All reports received are discussed
by the Regulation 28 Working Group, comprising Regional Medical Directors, and
other clinical and quality colleagues from across the regions. This ensures that key
learnings and insights around events, such as the sad death off Hannah, are shared
across the NHS at both a national and regional level and helps us to pay close
attention to any emerging trends that may require further review and action.
Thank you for bringing these important patient safety issues to my attention and please
do not hesitate to contact me should you need any further information.
Yours sincerely,
National Medical Director
Dr Shirley Radcliffe East London Coroners Court Queen’s Road, Walthamstow E17 8QP 2 January 2025 Sent by email to: Dear Dr Radcliffe, Re: RCPCH Response to the Inquest Touching the Death of Hannah Jacobs A Regulation 28 Report – Action to Prevent Future Deaths Thank you for sharing your report with us regarding the tragic and untimely passing of Hannah Jacobs. I was very sorry to hear of Hannah’s death. I have shared your report with other senior paediatric colleagues within RCPCH, namely our Officers for Clinical Standards and Quality Improvement. We have read your report carefully and note the following RCPCH activity in relation to the matters of concern. As the Royal College of Paediatrics and Child Health, we are primarily responsible for the education and training of paediatricians across the UK. We are not involved in the training of dentists and dental staff and have no role in the supply of epi-pens to pharmacies. As part of our training, we run CPD courses on child health topics that are of interest and relevance to the wider child health workforce. This includes Paediatric Allergy Training study days that focus on the practical clinical management of allergy in children and young people. These courses are suitable for all professionals seeing children with allergic disease. You can read more about these courses on our RCPCH Learning platform. We will ensure these continue to be widely promoted across the child health workforce. Our training curriculum has the following competency which is relevant to this case: “Recognises and manages the acute presentations and after-care of anaphylaxis, prescribing and training the family to use adrenaline autoinjectors, including documenting events and producing an emergency action plan with appropriate onward referrals.” The College also has a role in providing paediatric clinical guidelines and standards. Relevant to this matter would be our allergy care pathways which are signposted clearly on our website. The College will be sharing information and suggestions for local improvement from your report with our paediatric members via its patient safety portal. The anonymised information within your report will also be shared for discussion with the RCPCH Clinical Quality in Practice Committee, where further actions may be identified. Thank you for seeking our views and reminding us of the importance of this work. Our sincere condolences are with Hannah’s family. Yours sincerely RCPCH President
Care Quality Improvement Directorate Royal College of Physicians The Spine 2 Paddington Village Liverpool L7 3FA Tel: Email: www.rcp.ac.uk T: Dr Shirley Radcliffe Assistant Coroner East London Coroner’s Court Queens Road Walthamstow E17 8QP T: 11 October 2024 Dear Dr Radcliffe Report to prevent future deaths Hannah Eniola Angela Ayomipo Jacobs 09.10.2024 The Royal College of Physicians (RCP) notes with concern the content of the Regulation 28 report for the prevention of future deaths related to the death of Hannah Eniola Angela Ayomipo Jacobs. We send our sincere condolences to the family of Hannah Eniola Angela Ayomipo Jacobs. The Regulation 28 report is addressed to the President of the Royal College of Physicians but we note that Hannah was 13 years old, and therefore her care would be part of paediatric services, rather than adult services. However, RCP holds a Joint Committee on Immunology and Allergy that brings together professional leads in allergy for adult services. In addition the RCP hosts the IQAS accreditation programme for adult allergy services that develops standards for allergy services, and accredits services for achieving these standards. Sadly the key elements outlined in this tragic case have also been outlined in previous Regulation 28 notices when people have died from the preventable effects of acute allergic reactions. The dominant issues in Hannah’s case were the recognition of allergic/anaphylactic reaction by the patient, parent and health professionals, and the carrying and use of self administered adrenaline when anaphylaxis may be occurring. These elements need to be addressed through • Adequate provision of allergy services across the UK for both adults and children. This will be important as part of NHS England and other nations workforce plans. A14 • Education of healthcare professionals in all sectors on recognition diagnosis and management of allergy and anaphylaxis, including the carrying and use of self administered adrenaline. • National leadership for allergy within the NHS and across sectors that can contribute to reducing the risk for patients and populations. The RCP will work with Royal College of Paediatrics and Child Health, Royal College of Pathologists, British Society for Immunology – Clinical Immunology Professional Network, British Society for Allergy and Clinical Immunology, dental and pharmacy professional groups, to agree and support standards of care and education related to allergy. This will include updating standards for allergy accreditation, including the adoption of the BSACI adult allergy action plan where many of the aspects related to this case are addressed including carrying adrenaline autoinjectors, and difficulty in swallowing is an indication for the use of adrenaline. The RCP will continue to highlight the importance of education (around self-management and allergen avoidance) and access to service user support groups for services registered and accredited with IQAS, and more widely. We will also continue to promote multidisciplinary care for people with allergy including dietetic support. As a member of the expert advisory group on allergy (EAGA) the RCP is working on the development of the UK National Allergy Strategy. The UK National Allergy Strategy aims to provide a collaborative approach to improving health outcomes and other unmet needs of the allergic community across the UK. Yours sincerely Clinical Vice President A15
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