Prevention of Future Deaths reports · 2019
Regulation 28 report to prevent future deaths, reference 2019-0434, written 17 Dec 2019. A coroner writes one of these when an inquest reveals a risk that could cause further deaths unless something changes.
| Date of report | 17 Dec 2019 |
|---|---|
| Reference | 2019-0434 |
| Deceased | Lewis Mendelson |
| Coroner | Alison Mutch |
| Coroner area | Manchester South |
| Category | Community health care |
| Source | judiciary.uk record · original PDF |
| Responses published | 2 |
Text recovered by OCR from a scanned PDF. OCR is imperfect: check anything you rely on against the source PDF. Reproduced verbatim, including the scan's own layout.
REGULATION 28: REPORT TO PREVENT FUTURE DEATHS. REGULATION 28 REPORT TO PREVENT FUTURE DEATHS THIS REPORT IS BEING SENT TO: Chief Executive of Stockport Metropolitan Borough Council, Secretary of State for Health CORONER lam Alison Mutch, Senior Coroner, for the Coroner Area of Greater Manchester South CORONER'S LEGAL POWERS | make this report under paragraph 7, Schedule 5, of the Coroners and Justice Act 2009 and regulations 28 and 29 of the Coroners (Investigations) Regulations 2013 INVESTIGATION and INQUEST On 24" May 2019 | commenced an investigation into the death of Lewis Victor Mendelson. The investigation concluded on the 4" November 2019 and the conclusion was one of Narrative: Died from the recognised complications of cerebral palsy (the precise cause of which could not be established). The medical cause of death was 1a) Aspiration pneumonia on a background of an episode of vomiting; 1b) Cerebral Palsy — 4 CIRCUMSTANCES OF THE DEATH Lewis Victor Mendelson had profound learning disabilities and physical disabilities. He was placed by the Local Authority in a community care facility. He was not subject to a DoLS. His last statutory 12 month review took place over 2 years before his death. He had no allocated Local Authority social worker. On the night of 8th May 2019 he vomited. He was taken to hospital some hours later. Repeated attempts were made to insert a nasogastric tube causing him significant distress. He was placed on end of life care with no formal best interests meeting or Independent Mental Capacity Advocate (IMCA) in place. He returned to his home address with end of life care. He appeared to begin to improve and antibiotics were restarted. He subsequently deteriorated again and died on 16th May 2019 at his home address, 10 Firs Grove, Gatley. P| CORONER'S CONCERNS During the course of the inquest the evidence revealed matters giving rise to concern. In my opinion there is a risk that future deaths will occur unless action is taken. In the circumstances it is my statutory duty to report to you. The MATTERS OF CONCERN are as follows. ~ 1. The inquest was told that he met the criteria for a DoLS but due to backlogs within the Local Authority one was not in place at the time of his death. He also met the criteria for an annual review of his care - this had not taken place for over 2 years due to staff shortages. There was no designated Social worker overseeing his care due to staffing shortages; 2. He was treated in hospital with no IMCA in place or formal best interests meeting taking place. As a result it was unclear if the treating physicians understood the complexity of his learning disability and communication issues that flowed from his disability. The inquest heard that repeated attempts were made to insert a nasogastric tube causing him great distress and where there was limited evidence that it would be beneficial: 3. He was placed on End of Life Care with no best interests meeting taking place or discussion with an IMCA or assessment of what should happen if he rallied — as he did. ACTION SHOULD BE TAKEN In my opinion action should be taken to prevent future deaths and | believe you have the power to take such action. YOUR RESPONSE You are under a duty to respond to this report within 56 days of the date of this report, namely by 11" February 2020. |, the coroner, may extend the period. Your response must contain details of action taken or proposed to be taken, setting out the timetable for action. Otherwise you must explain why no action is proposed. COPIES and PUBLICATION | have sent a copy of my report to the Chief Coroner and to the following Interested Persons namely 1) on behalf of the care facility, who may find it useful or of interest. 1am also under a duty to send the Chief Coroner a copy of your response. The Chief Coroner may publish either or both in a complete or redacted or summary form. He may send a copy of this report to any person who he believes may find it useful or of interest. You may make representations to me, the coroner, at the time of your response, about the release or the publication of your response by the Chief Coroner. Alison Mutch OBE HM Senior Coroner 17.12.2019
2 responses published against this report on judiciary.uk. A response is a body's written reply to the coroner's concerns; publication is at the discretion of the Chief Coroner's office, so an absent response does not mean nobody replied.
4 STOCKPORT __ 2°Ftoor Stopford House METROPOLITAN BOROUGH COUNCIL Piccadilly Stockport SK1 3XE Tel: 07866 999857 | i Ask for: Alison Mutch, Senior Coroner Manchester South Coroners Court 1 Mount Tabor Street Stockport SK1 3AG Wednesday 12" February 2020 Dear Ms Mutch Re: The Regulation 28 Report submitted to Stockport Metropolitan Borough Council regarding Lewis Victor Mendelson This response solely addresses the concerns under paragraph 1, “The MATTER OF CONCERN”. Stockport Metropolitan Borough Council are unable to comment in respect of paragraph 2 which refers to the individual's hospital treatment as, in accordance with the Mental Capacity Act 2005, the decision maker for best interest decisions in relation to medical treatment had been the NHS Trust. The arrangement of an IMCA and formal best interests meeting had been the responsibility of the Trust as this had concerned medical decisions. In this instance the NHS Trust would have been under a duty to consult with Stockport Council as stated in the Mental Capacity Act “...anyone engaged in caring for the person or interested in his welfare...”. Ultimately, if the matter had gone to the Court of Protection, the NHS Trust would have been the applicant. The same issue applies in relation to paragraph 3 as this would have been the decision of the NHS Trust, or alternatively the General Practitioner, to place the individual onto the pathway for End of Life Care. Response to “The MATTER OF CONCERN”, Paragraph 1 Stockport Council acknowledges that there has been a historic issue with regards to the timely undertaking of annual reviews in the Learning Disabilities Service. This is not an issue unique to Stockport Council alone as indeed many other local authorities are also challenged in this area, due to the present resources, service pressures and competing priorities. However, at present Stockport Council is in the process of addressing these matters. A business case has been presented and agreed, in order to fund and create a dedicated review team comprising initially of six social workers plus a team manager - including an option to increase staff numbers as required - with a view to addressing the entire backlog of reviews throughout the financial year 2020/21. Furthermore, additional work will be undertaken with the intention of evaluating Stockport Council's staffing resource and implementing a sustainable model for managing reviews from April 2021 onwards. For individuals who are supported by Stockport Council within community settings and who may be deprived of their liberty, there will be an expectation that, on review, the allocated social worker will triage the case in accordance with the national Association of Directors of Adult Social Services (ADASS) guidance. | trust that the above information provides you with the reassurance that Stockport Council are addressing the areas of concern that you have raised in relation to paragraph 1 of the Regulation 28 Report. However, if you do require further details, please do not hesitate to contact me. Yours Sincerely, ik Director of Adult Social Care, On behalf of Stockport Metropolitan Borough Council
Your Ref: 13020/CH
Our Ref: PFD-1198676
Ms Alison Mutch OBE
HM Senior Coroner, Manchester South
HM Coroner's Court
1 Mount Tabor Street
Stockport SK1 3AG
Dear Ms Mutch
From Helen Whately MP
Minister of State for Care
39 Victoria Street
London
SW1H 0EU
020 7210 4850
28th April 2020
Thank you for your letter of 17 December 2019 to Matt Hancock about the death of Lewis
Mendelson. I am replying as Minister with portfolio responsibility for learning disabilities
and I am grateful for the additional time in which to do so.
Firstly, I would like to say how saddened I was to read of the circumstances of Mr
Mendelson’s death. It is important that we take the learning from Mr Mendelson’s death to
ensure that people with learning disabilities receive the highest quality care that meets
their needs.
I am deeply concerned to read in your report that Mr Mendelson was not assigned a social
worker and an annual review of his care was not conducted by the Stockport Metropolitan
Borough Council. This is the second Prevention of Future Deaths report received by the
Department where Manchester South coroners have raised concerns that annual care
reviews have not been conducted by Stockport Council as required by law. This is clearly
unacceptable and I expect Stockport Council to look into this matter thoroughly.
The Social Care Act 20141 is clear that local authorities should carry out regular reviews of
care plans. The guidance states that:
“without a system of regular reviews, plans could become quickly out of date
meaning that people are not obtaining the care and support required to meet their
needs. Plans may also identify outcomes that the person wants to achieve which
are progressive or time limited, so a periodic review is vital to ensure that the plan
remains relevant to their goals and aspirations.” 2
Local authorities should establish systems that allow the proportionate monitoring of both
care and support plans to ensure that needs continue to be met.
1 http://www.legislation.gov.uk/ukpga/2014/23/contents/enacted
2 https://www.gov.uk/government/publications/care-act-statutory-guidance/care-and-support-statutory-
guidance#Chapter13
There are several different routes to reviewing care and support plans. These include:
• A planned review, the date for which is agreed with the individual during care and
support, or support planning, or through general monitoring;
• An unplanned review, that results from a change in needs or circumstance that the
local authority becomes aware of, e.g. a fall or hospital admission; and,
• A requested review, where the person with the care and support, or support plan, or
their carer, family member, advocate or other interested party makes a request that
a review is conducted. This may also be the result of a change in needs or
circumstances.
It is the expectation that local authorities should conduct a review of the plan at least once
every 12 months, although a light touch review should be considered six to eight weeks
after agreement and sign-off of the plan and personal budget, to ensure that the
arrangements are accurate and there are no initial issues to be aware of. This light-touch
review should also be considered after revision of an existing plan to ensure that the new
plan is working as intended.
Councils are accountable to their local populations and that includes accountability for
meeting their statutory duties under the Care Act 2014.
If an individual is unhappy with the care arranged by a local authority, they can make a
complaint using the local authority complaints process. If they remain dissatisfied, they
can seek assistance from the Local Government and Social Care Ombudsman.
In relation to Deprivation of Liberty Safeguard (DoLS), we recognise that the current DoLS
system is bureaucratic and inefficient and that it fails to provide vital safeguards to people
who lack capacity to consent to their care and treatment arrangements.
As a short-term solution, the managing local authority can use an urgent authorisation
while also making a request for a standard authorisation. Looking forward, the Mental
Capacity (Amendment) Act (2019)3 introduced Liberty Protection Safeguards (LPS), that
are planned to replace DoLS in October 2020. LPS will provide protections for individuals
in a more streamlined and focused way. Each application will take the responsible body
less time to process and more people will be provided with safeguards than under DoLS.
We are aware that social worker support is not always as available as it should be for
people across our health and care system, leading to health inequalities and poor
outcomes for people. Social workers have a professional duty and an accountability not
just to tackle these health inequalities but to lead solutions and protect people’s rights.
That is why the Chief Social Worker for Adults in the Department of Health and Social
Care is leading work in Government, with our systems partners, the wider public and
crucially, experts by experience, to develop social work and social care practice in this
critical area.
3 http://www.legislation.gov.uk/ukpga/2019/18/enacted
To support local authorities, we are providing councils with access to an additional
£1.5billion for adults and children’s social care next year. This includes an additional
£1billion of grant funding for adults and children’s social care, and a proposed 2 per cent
precept4 that will enable councils to access a further £500million for adult social care. This
£1.5billion is on top of maintaining the £2.5billion of existing social care grants and will
support local authorities to meet rising demand and continue to stabilise the social care
system.
For Stockport, this means that the Council is set to receive an additional £4.8million from
the new Social Care Grant and the Council could raise up to £3.6million of additional
funding specifically for adult social care in 2020/21 following the introduction of the
precept5. In addition, Stockport Council will receive £11.6million of funding through the
maintenance of the existing Adult Social Care grants in 2020/21. Future funding for social
care will be set out at the next spending review.
I share your concern that no best interests’ meetings were held to consider Mr
Mendelson’s care in hospital. While a formal best interests meeting is not a duty, under
section 4 of the Mental Capacity Act (2005)6 (MCA) the decision maker must take into
account, if it is practicable and appropriate to consult them, the views of anyone named by
the person as someone to be consulted, anyone engaged in caring for the person or
interested in their welfare, any person with lasting power of attorney or a deputy appointed
by a court.
The person at the centre of the authorisation should also be consulted and the Code of
Practice recommends that all possible and appropriate means of communication should be
tried. A best interests meeting may be required if there is a dispute or a decision is
required concerning a long-term move or serious medical treatment. Section 4 (9) of the
MCA confirms that if someone makes a decision which they reasonably believe is in the
best interests of the person who lacks capacity they will have complied with the best
interests’ principle set out in the Act.
In relation to an Independent Mental Capacity Advocate (IMCA) for Mr Mendelson, under
the MCA an IMCA must be instructed and consulted for people lacking capacity to consent
to their care and treatment when an NHS organisation is proposing to provide serious
medical treatment. The MCA Code of Practice7 provides guidance on when an IMCA
should be instructed. I am advised that it is currently under review by the Ministry of
Justice and consultation is planned. The revised Code will improve protections for the
person at the centre of the authorisation and ensure that their wishes and feelings are
considered.
Turning to the wider aspects of your report, you may wish to note that in 2015, the
Government established the Learning Disabilities Mortality Review (LeDeR) Programme.
4 https://www.gov.uk/government/speeches/provisional-local-government-finance-settlement-2020-to-2021-statement
5 This projection includes a small proportion of base tax rate growth.
6 http://www.legislation.gov.uk/ukpga/2005/9/section/4
7 https://www.gov.uk/government/publications/mental-capacity-act-code-of-practice
The Programme systematically reviews the deaths of all people with a learning disability,
aged four years and above, that are notified to it. The Programme enables a detailed
picture to be built of key improvements that are needed both locally and at a national level,
to reduce the inequality in life expectancy between people with a learning disability, and
those without.
I am advised by NHS England and NHS Improvement that Mr Mendelson’s death is
currently being reviewed under the LeDeR process and I expect the local NHS to reflect on
the findings of the review and take necessary action to address any failings in the care
provided locally for people with a learning disability.
One of the commonly reported learning points in local LeDeR reviews is the need for
learning disability awareness training for staff in health and social care settings.
On 5 November 2019, we published our response to the consultation on mandatory
learning disability and autism training for health and care staff8. We are now working with
Health Education England and Skills for Care to develop and test, during 2020/2021, a
standardised training package, backed by £1.4million investment. Work is already
underway to develop the training and testing will take place in a variety of health and social
care settings to help shape how it will be rolled out and delivered in future. Our plans to
introduce mandatory training will go a long way to ensuring more people receive the safe,
compassionate and informed care they have a right to expect.
Finally, I have asked officials to bring your report to the attention of the National Director
for Learning Disabilities, Ray James, who is leading work nationally to improve services for
people with learning disabilities and/or autism.
I hope this response is helpful. Thank you for bringing these concerns to my attention.
HELEN WHATELY
8 https://www.gov.uk/government/consultations/learning-disability-and-autism-training-for-health-and-care-staff
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