Prevention of Future Deaths reports · 2023
Regulation 28 report to prevent future deaths, reference 2026-0250, written 4 Jul 2023. A coroner writes one of these when an inquest reveals a risk that could cause further deaths unless something changes.
| Date of report | 4 Jul 2023 |
|---|---|
| Reference | 2026-0250 |
| Deceased | Stella James |
| Coroner | Rachel Knight |
| Coroner area | South Wales Central |
| Source | judiciary.uk record |
| Responses published | 1 |
Text extracted from the PDF text layer. Reproduced verbatim, including the scan's own layout.
GRAEME HUGHES HIS MAJESTY’S SENIOR CORONER SOUTH WALES CENTRAL CORONER AREA ANNEX A CORONER’S OFFICE THE OLD COURTHOUSE COURTHOUSE STREET PONTYPRIDD CF37 1JW Telephone: 01443 281100 Email: Coroneradmin@rctcbc.gov.uk REGULATION 28: REPORT TO PREVENT FUTURE DEATHS (1) NOTE: This form is to be used after an inquest. REGULATION 28 REPORT TO PREVENT FUTURE DEATHS THIS REPORT IS BEING SENT TO: The Chief Executive of Cardiff City Council, Director of Social Services, Cardiff City Council CORONER I am Rachel Knight Assistant Coroner, for the coroner area of South Wales Central. CORONER’S LEGAL POWERS I make this report under paragraph 7, Schedule 5, of the Coroners and Justice Act 2009 and regulations 28 and 29 of the Coroners (Investigations) Regulations 2013. INVESTIGATION and INQUEST 1 2 3 On 27 January 2021 I commenced an investigation into the death of Stella Ann JAMES . The investigation concluded at the end of the inquest on 13/06/2023. The conclusion of the Coroner’s Office, The Old Courthouse, Courthouse Street, Pontypridd, CF37 1JW inquest was natural causes. 1a Left Lobar Pneumonia 1b Severe Malnutrition (BM1 12.8) 1c Avoidant Restrictive Food Intake Disorder (ARFID) II Chronic Fatigue Syndrome CIRCUMSTANCES OF THE DEATH These were recorded as Stella Ann James was aged 40 when she died at the Royal Glamorgan Hospital on 20th January 2021. Stella had a complex medical history over a 6 year period. Over time, she had stopped tolerating food orally, due to pain and distressing symptoms. Stella had been thoroughly investigated for every conceivable physical, Psychiatric and Psychological cause. There was no evidence of anorexia symptoms, but she did fit the criteria for ARFID (Avoidant Restrictive Food Intake Disorder). Ultimately, Stella was fed with a tube, but had restricted the amount of food she took, to the point that she was malnourished and very underweight On 19th January 2021, her parents rang 999 after finding her minimally conscious at home. She was admitted to hospital and had a severe pneumonia with sepsis which was treated, however her condition deteriorated and she died the next day. The Inquest focused upon:- a. The diagnosis and treatment of Stella’s illness CORONER’S CONCERNS During the course of the inquest the evidence revealed matters giving rise to concern. In my opinion there is a risk that future deaths will occur unless action is taken. In the circumstances it is my statutory duty to report to you. 5 The MATTERS OF CONCERN are as follows. (1) Stella appeared to meet the criteria as an ‘adult at risk of neglect’ due to her food avoidance and very low body weight, yet there was no apparent mechanism for Social Services to be aware of Stella’s status. Stella was very secretive and formally had capacity when assessed months before her death, although it is noted that this can fluctuate. (2) Could there be a register to include a person in Stella’s position, whereby unannounced house visits from a social worker can be an option? Perhaps involving a mechanism for Coroner’s Office, The Old Courthouse, Courthouse Street, Pontypridd, CF37 1JW anonymous referral? ACTION SHOULD BE TAKEN 6 7 8 In my opinion action should be taken to prevent future deaths and I believe you and your organisation have the power to take such action. YOUR RESPONSE You are under a duty to respond to this report within 56 days of the date of this report, namely by 29th August 2023. I, the Coroner, may extend the period. Your response must contain details of action taken or proposed to be taken, setting out the timetable for action. Otherwise you must explain why no action is proposed. COPIES and PUBLICATION I have sent a copy of my report to family who may find it useful or of interest. I am also under a duty to send the Chief Coroner a copy of your response. The Chief Coroner may publish either or both in a complete or redacted or summary form. He may send a copy of this report to any person who he believes may find it useful or of interest. You may make representations to me, the coroner, at the time of your response, about the release or the publication of your response by the Chief Coroner. 4 July 2023 9 SIGNED: Coroner’s Office, The Old Courthouse, Courthouse Street, Pontypridd, CF37 1JW Rachel Knight Assistant Coroner for South Wales Central Coroner Area Coroner’s Office, The Old Courthouse, Courthouse Street, Pontypridd, CF37 1JW
1 response published against this report on judiciary.uk. A response is a body's written reply to the coroner's concerns; publication is at the discretion of the Chief Coroner's office, so an absent response does not mean nobody replied.
28th August 2023 Ms R Knight, Assistant Coroner for South Wales Central Coroner Area Dear Ms Knight, Re: Cardiff Council response regarding Regulation 28 Report - Stella Ann James (deceased) I am writing on behalf of correspondence from the Coroner’s Office dated 4th July 2023. I was greatly concerned to read about Ms James’s tragic and untimely death. to formally acknowledge receipt of the A thorough review has been undertaken in respect of Cardiff Adult Service’s involvement with Ms James to gain a comprehensive overview of how her case was managed. We recognise the importance of identifying any lessons that can be learned from the Coroner’s report, understanding the important contribution this makes to preventing future deaths. I am now in the position to respond appropriately to the two points of concern outlined in your Regulation 28 Report and address them below. 1. Stella appeared to meet the criteria as an ‘adult at risk of neglect’ due to her food avoidance and very low body weight, yet there was no apparent mechanism for Social Services to be aware of Stella’s status. Stella was very secretive and formally had capacity when assessed months before her death, although it is noted that this can fluctuate. Cardiff Council staff were not directly involved in Ms James’s care whilst she was living in Cardiff, however, we do have officers working in the Pendine Centre as part of the Multi- disciplinary Community Mental Health Team (CMHT). Having received your correspondence, we have now had the opportunity to access Stella’s medical notes on PARIS (Cardiff and Vale University Health Board Your information is processed under the Data Protection Act 2018 to fulfil Cardiff Council’s legal and regulatory tasks as a local authority. For further information on what personal data we hold and how long we keep it for, please view our Privacy Policy; www.cardiff.gov.uk/privacynotice If you have concerns about how your data has been handled, contact the Council’s Data Protection Officer via dataprotection@cardiff.gov.uk . Your information has been shared with Xerox in order to contact you today. For further information on how Xerox manage personal data, please view Privacy Policy; www.xerox.co.uk/en-gb/about/privacy-policy Database) and we have also had access to the Draft Internal Review conducted by Cardiff and Vale UHB’s Mental Health Directorate. In addition, we have also had the opportunity to discuss the case with the Deputy Directorate Manager for Specialist Services within Cardiff and Vale UHB who has overall responsibility for the Serious High Risk Eating Disorder Service (SHED). As you are aware, Ms James received input from a number of professionals employed by Cardiff and Vale UHB which included Consultant Psychiatrists, Clinical Psychologist, Dieticians and Nurses from various teams including SHED, Liaison Psychiatry, Dietetics, and the District Nurse Service. When Ms James returned to live in Cardiff she was referred to SHED. To access this service a patient needs to be open to a Community Mental Health Team which in Ms James’s case was the team based at the Pendine Centre. This team is a multi-disciplinary team made up of local authority and health professionals. As Ms James’s needs were identified as being health and not social care related, she had no direct involvement from local authority staff when under this team. Her case, however, would have been discussed at the multi-disciplinary team meetings, in which local authority staff would have been present. If any issues had been raised during these meetings that indicated that input from local authority social work staff was required, this would have been acted upon, however this was not the case. When Ms James was closed to the Serious High Risk Eating Disorder Service (SHED) in December 2020, a plan was put in place should the situation change. It was agreed that if Ms James’ parents had concerns and Ms James had not been able or willing to get help, they could contact services directly as they had done previously. At point of closure to secondary mental health services Ms James continued to have other health professionals, namely her GP and District Nurses involved in her care who could have raised concerns or made a referral to social services at any time if they felt it appropriate. Therefore, we are confident that although the local authority staff had no direct involvement with Ms James’s care, the professionals involved from Cardiff and Vale UHB could have made a referral for social work assistance if that was required. The process and procedures around this are well established and we have no doubt that if the professionals involved felt it appropriate a referral would have been made. 2. Could there be a register to include a person in Stella’s position, whereby unannounced house visits from a social worker can be an option? Perhaps involving a mechanism for anonymous referral? At the time of the closure of her case to secondary mental health services, Ms James was deemed to have capacity to make decisions about her care and during her involvement with services had declined to see anyone face to face, choosing to see professionals ‘virtually.’ One of the points of learning from the internal review carried out by Cardiff and Vale UHB Mental Health Clinical Board was that, with one exception (in June 2019), none of the health professionals involved saw her in person. This made physical health monitoring difficult. It was acknowledged during the internal review that although Ms James had declined face to face meetings, there was nothing to stop this from happening, and the health professionals involved could have taken a more assertive approach and insisted on a home visit. As Ms James was living with her parents, there would have been no issue with gaining access, and I understand that Ms James’s parents would very much have welcomed a home visit from the health professionals involved in their daughter’s care. Other findings from the internal review included the need for better case co-ordination and a more formal multi-disciplinary approach to the closure of cases. I understand that the learning from this review was shared appropriately, including with senior clinical staff. While the findings in this case applied to the Cardiff and Vale UHB rather than the local authority, we have reviewed these to ensure that we are also learning from the outcome of this very tragic case. In terms of holding a register of adults with similar needs to Ms James, as her needs required clinical expertise, it would be more appropriate that any ongoing review arrangements were carried out by Cardiff and Vale UHB. In cases such as Ms James, involving complex medical and health issues, it requires the input of health professionals with the appropriate knowledge and training to make any determinations, this would include whether an unannounced visit should take place and also to undertake that visit. In terms of holding a register of vulnerable adults more generally, we think that this could potentially negatively impact on the existing arrangements in place for appropriate multi agency involvement in future complex cases. In this case the decision not to refer for social worker involvement was the correct one and, having reviewed current arrangements, all partners are confident that should such a referral be assessed as needed in a future case then the process is clear and unambiguous. There is also the potential that the creation of a much wider vulnerable adults list would give the misguided impression to someone referring an individual onto the register, that the individual would be safeguarded. Currently, all professionals involved with each vulnerable individual must ensure that appropriate monitoring and oversight is in place and, the internal review carried out by Cardiff and Vale UHB brought invaluable learning into this aspect of current working practice. Therefore, after full consideration, we suggest that the creation of a separate list would not answer the key issues arising from this tragic case and would not reduce the risk that future deaths might occur. Further, potentially we would be concerned that such a step would potentially negatively impact on effective multi-agency referral arrangements and make professional accountabilities less clear. I would like to assure you that the Council has fully considered the concerns set out in the Regulation 28 report and whilst we have concluded that it would not be appropriate for the Council to operate a separate register for vulnerable adults in similar circumstances, please be assured that we have reviewed the learning from the internal review carried out by Cardiff and Vale UHB and have appropriately reflected on the points raised. We are committed to ensure that the learning from this case informs practice going forward. Yours sincerely, Corporate Director People and Communities
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