Prevention of Future Deaths reports · 2020
Regulation 28 report to prevent future deaths, reference 2020-0114, written 29 May 2020. A coroner writes one of these when an inquest reveals a risk that could cause further deaths unless something changes.
| Date of report | 29 May 2020 |
|---|---|
| Reference | 2020-0114 |
| Deceased | Omarian Brooks |
| Coroner | Andrew Harris |
| Coroner area | London Inner (South) |
| Category | Community health care |
| Organisation named | London Ambulance Service NHS Trust |
| Source | judiciary.uk record · original PDF |
| Responses published | 3 |
Text extracted from the PDF text layer. Reproduced verbatim, including the scan's own layout.
REGULATION 28 REPORT TO PREVENT FUTURE DEATHS THIS REPORT IS BEING SENT TO: 1. Mr Garret Emmerson, Chief Executive Officer, London Ambulance Service, 220 Waterloo Road, London SE1 8SD 2. Ms Kim Wright, Chief Executive London Borough of Lewisham, Laurence House, 1 Catford Road, London SE6 4RV 3. Sydenham Green Group General Practice, Sydenham Green Health Centre, 26 Holmshaw Close, London SE26 4TH 4. Mr Ben Travis, Chief Executive, Lewisham & Greenwich NHS Trust, Queen Elizabeth Hospital, Stadium Road, London, SE18 4QH 1 CORONER I am Andrew Harris, Senior Coroner, London Inner South jurisdiction 2 CORONER’S LEGAL POWERS I make this report under paragraph 7, Schedule 5, Coroners and Justice Act 2009 and regulations 28 and 29 of the Coroners (Investigations) Regulations 2013. 3 INQUEST I opened an inquest into the death of Master Omarian Brooks, who died aged 11 years on 28th May 2017 (01552-2017). After a number of corporate investigations, including a Serious Case Review, concluded on 13th January 2020, reserved judgment being delivered on 23rd January. Delay in processing this report was occasioned by the Senior Coroner being on sick leave for a month and the priorities of the pandemic. The medical cause of death was: 1a Sepsis 1b Pneumonia II Complex neuro-disability. The narrative conclusion was natural causes contributed to by a failure to adopt a patient specific care protocol covering appropriate health and emergency care in an acute deterioration. 4 CIRCUMSTANCES OF THE DEATH This severely disabled boy was given antibiotics by his parents on 22nd May, but it appeared that the GP was unaware of this and his continued deterioration, for which there was no protocol for management, although there was a discussion between the duty doctor and parents on 24th about the dose of Clonidine (not an antibiotic). On 27th an ambulance was called and he died en route to hospital, without having had a GP visit. There was no agreement between the general practice and the Serious Case Review Report as to whether there was over-reliance on the parents to gauge the seriousness of his medical conditions. The family had asked for the London Ambulance Service to arrange a patient specific protocol in the past, which was not in place; a Child In Need Plan was never completed by the Local Authority, in part due to a meeting with relevant professionals not being held. 5 CORONER’S CONCERNS The MATTERS OF CONCERN are as follows. – 1. The Record concludes that had the GP been informed of the boy’s deterioration either 4 days before the antibiotic was started or soon after, he would have been admitted to hospital with a real prospect of the infection being successfully treated. 2. There was also a distressing dispute between the ambulance crew and parents as to which hospital Omarian should be taken, in the event he was not taken to the nearest hospital at the insistence of his parents (although in this instance the delay was not found to have contributed to the death). 6 ACTION SHOULD BE TAKEN It is not for the court to determine whether earlier admission to hospital of potentially septic disabled children is achieved by a Patient Specific Protocol or Child in Need Plan or by way of mandating informing the general practice that antibiotics had been started, or a combination of these or other forms of multi-disciplinary care. Accordingly these agencies and the local hospital are the subject of the report as in my opinion their joint action should be taken to prevent future deaths. It is not clear that the steps taken by the general practice for the duty doctor to inform colleagues of a consultation, nor the action plan by the Borough implementing the recommendations of the SCR, which refers to standby antibiotic usage (and not communications with the GP), and does not specifically involve the London Ambulance Service can be relied upon to prevent such a death recurring. Some information was submitted after conclusion of the inquest by L&G NHS Trust, which had not been admitted as evidence and may usefully be part of the response to the report. I believe that these organizations would wish to learn of the evidence given in the inquest about the circumstances of this death and can mitigate or prevent future deaths by articulating their joint action. 7 YOUR RESPONSE You are under a duty to respond to this report within 56 days of the date of this report, namely by Friday 24th July 2020. I, the coroner, may extend the period. If you require any further information or assistance about the case, please contact the case officer, 8 COPIES and PUBLICATION I have sent a copy of my report to the following Interested Persons: have an interest and may be in a position to offer advice on mitigating such tragedies: Evelina Children’s Department, Guys and St Thomas’ Hospital NHS Foundation Trust and Royal College of Paediatrics and Child Health. I am also sending this report to the following, who I am also under a duty to send the Chief Coroner a copy of your response. The Chief Coroner may publish either or both in a complete or redacted or summary form. He may send a copy of this report to any person who he believes may find it useful or of interest. You may make representations to me, the coroner, at the time of your response, about the release or the publication of your response by the Chief Coroner. 9 [DATE] [SIGNED BY CORONER] 29th May 2020 Andrew Harris, Senior Coroner
3 responses published against this report on judiciary.uk. A response is a body's written reply to the coroner's concerns; publication is at the discretion of the Chief Coroner's office, so an absent response does not mean nobody replied.
London Ambulance Service
NHS Trust
Legal Services
Headquarters
220 Waterloo Road
London
SE1 BSD
Tel: 0207 783 2001
Fax: 0207 783 2009
www.londonambulance.nhs.uk
Your Ref:
Our Ref : 5972
Date : 23 July 2020
HMC Andrew Harris
London Inner South
Southwark Coroners Court
1 Tennis Street
London
SE11YD
Dear Mr Harris
Regulation 28: Prevention of Future Deaths Report for Master Omarian Brooks
Thank you for your Regulation 28 Prevention of Future Deaths Report (PFD) dated 29 May
2020.
I would like to take this opportunity at the outset of my letter to offer my deepest
condolences to Master Brooks' family.
Following the conclusion of the above inquest, the London Ambulance Service NHS Trust (LAS)
understands from the PFD report that the learned Coroner has recommended that the London
Borough of Lewisham, the LAS, Sydenham Green Group Practice and Lewisham & Greenwich
NHS Trust work together on the issue of inter-agency working to prevent future similar deaths.
The matter of concern for the LAS is the dispute regarding the conveyance to hospital and the
Patient Specific Protocol (PSP), which I will address in turn:
1. Managing the Conveyance of Patients
The LAS's position on conveying patients to the most appropriate destination is detailed in
OP/014 Managing the Conve ance of Patients Policy and Procedure. During the inquest you
Sector Senior Clinical Lead, that this policy was due to be
were advised by Ms
updated but due to t e curren pandemic it has not been possible for the LAS to carry out this
update. The LAS endeavours to update this policy by the end of October 2020.
Given that this patient was presenting with a potentially critical illness, conveyance to the
nearest emergency department was indicated. The acceptable exceptions to conveying the
child to another hospital would not apply in an emergency situation save for the nearest unit
not being equipped to deal with a paediatric patient. This would not have been the case with
Lewisham Hospital which has a paediatric emergency department.
The crew had correctly identified that the child was critically unwell and moved to convey them
to the nearest emergency department as per policy.
Furthermore, during the inquest you were also advised by Ms - tha t the Policy for Consent
to Examination or Treatment (OP/031) will be updated by herself. However, due to the current
pandemic Ms -was re-deployed to frontline clinical duties and therefore it was not possible
to carry out this update. However, at the time of writing Ms -
is liaising with the relevant
persons within the LAS to progress the update of this policy and endeavours to update this
policy by the end of October 2020.
2. Patient Specific Protocols (PSP)
In 2017 the LAS was operating a PSP process which involved the patients' regular clinician
(GP or Hospital Consultant) completing paper forms detailing the specific clinical requirements
that may be required for their patient's condition. This form was faxed or emailed to the LAS,
in order to provide supplemental information to the crews when attending the patient in an
emergency. The PSP lasted for 1 year with the responsibility of renewing and updating it lying
exclusively with the clinician who initially completed it. A PSP has never and can never be
written by the LAS as this responsibility lies with the patients' regular clinician.
A 'flag' in the Emergency Operations Centre {EOC) mapping system was placed so if an
emergency call was received by the LAS for that address a little note would come up to say
there was a PSP. It was clear to the LAS that this system was not optimal for all of our patients
so in collaboration with NHS England (NHSE) and NHS Improvement (NHSI) the LAS
transitioned to use the Coordinate My Care (CMC) system for PSPs in 2019. Around February
2018 with the roll-out of iPads, the LAS wrote to acute Trusts in London to inform them that the
practice of holding PSPs within our control room was going to be phased out within the next
year due to the introduction of the CMC system. All Trusts were asked to review existing PSPs
and transfer them to the CMC system.
In April 2019 the LAS again wrote to acute Trusts in London to reiterate the introduction of the
CMC system and asked all clinicians to review existing paper PSPs in existence and transfer
them onto the CMC system by 1st July 2019. The transition process was robust and overseen
by NHSE and the Healthy London Partnership.
CMG is a system owned and governed by The Royal Marsden Hospital for the sharing of
specific clinical and patient information pan London accessible by any and all Hospitals and
Clinicians, once they obtain log in credentials. The goal being that important clinical information
could be seen by any organisation with a single log in as opposed to being held in isolation in
multiple systems at multiple trusts or practices and therefore not visible in a true emergency.
Following the support from NHSE and NHSI, CMC is now the current and only system by which
the LAS is able to safely, efficiently and effectively access PSPs. Ambulance clinicians now
have immediate access to up to date specific clinical information about that patient, including
complex issues encountered at the end of someone's life.
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An additional functionality that CMC affords patients is the ability to start their own record. This
initial record is subsequently clinically validated by the patient's usual clinician in discussion
with the patient themselves. This function is called "My CMC".
The CMC team, Healthy London partnership, NHSE and NHSI all continue to work with
stakeholders to improve and refine the CMC system with the vision that it will become the single
point of contact for detailed clinical patient information in an emergency pan London.
At the time of writing, the LAS's legal services department has contacted the legal
representatives of London Borough of Lewisham, Sydenham Green Group Practice and
Lewisham & Greenwich NHS Trust to co-ordinate a meeting.
It has been suggested that
2
representatives of each agency meet with t~akeholder Engagement Manager for
South East London, Mr
A mutually convenient date for such
meeting is yet to be agreed.
and Ms -
I hope this response is helpful in explaining the specific actions undertaken by the LAS.
Yours sincerely
Chief Executive Officer
3
IN THE INNER LONDON SOUTH CORONER'S COURT
IN THE MATTER
TOUCHING INTO THE DEATH OF
MASTER OMARIAN BROOKS
DR_ , ON BEHALF OF SYDENHAM GREEN GROUP PRACTICE,
RESPONSE TO CORONER'S PREVENTION OF FUTURE DEATH REPORT
Background:
1. The response to the Coroner's Prevention of Future Death Report dated 29 May 2020
are made on behalf of Dr
an interested person pursuant to section 4 7
(2) (g) or (m) of the Coroner's and Justice Act 2009 ("the Act"). These are made on
and the Sydenham Green Group Practice ("the Practice"), as the
behalf of Dr -
parties relevant to D r - to whom a rep01t might be addressed. Dr-and the
Practice will be referred collectively as "the GPs" except where it is necessary to
distinguish the two.
2. The Inquest took place on 10th and 13th January 2020 at the Inner London South
Coroner's Coutt following the death of Master Omarian Brooks who died aged 11
years on 28th May 2017. The Learned Coroner has provided the Record of Inquest and
conclusions and findings of fact on 23rd January 2020.
3. The Learned Coroner in their Prevention of Future Deaths report raised matters of
concerns:
Matters of Concern:
I. The Record concludes that had the GP been informed ofthe boy's deterioration either 4
days before the antibiotic was started or soon after, he would have been admitted to
hospital with a real prospect ofthe i,ifection being successfully treated.
4. The GPs have implemented a policy for circumstances where 'rescue pack' antibiotics
are prescribed to patients with complex needs on a repeat basis. This policy includes
an agreement which has to be made between the GPs and the parents. This agreement
states the parents must telephone the GP Practice on the first day that they start their
children on the antibiotics. This allows for the named GP to record in the patient's
notes that they have started on antibiotics. We enclose a copy of the policy to the
response.
5. The GPs held a Practice Meeting on 29 June 2020 following on from the Coroner's
conclusion and the Prevention of Future Deaths report. We enclose a copy of the
Practice Meeting notes for your reference.
6. The GPs discussed during their meeting developing and putting in place a quarterly
meeting to discuss children aged 5-18 with complex medical needs who are not
discussed as part of the Health Visitor MDT aged 0-5 or the Palliative
Care/Community MDT ages 18+. The GPs envisage that most of the Practice's GPs
attend this and each bring a small number of cases to be discussed. The GPs have
scheduled to have a quarterly meeting in September 2020.
7. As a result ofOmarian's death, all children who are coded as having complex needs
have been allocated to a named GP. Therefore, any correspondence relating to these
patients are to be brought to the attention of that named GP. In order to ensure that
these patients have been allocated a named GP, the GPs are planning to undertake
audits on a monthly basis to confirm that this change has been implemented. The most
recent audit to confirm the implementation took place on 8 July 2020 and is enclosed
to this response. The named GP is also to consider discussing with the families of the
children whether they should have a Coordinate My Care plan in place to share
treatment plan with other services.
8. In situations where a GP receives a request for rescue antibiotics or similar from a
hospital or Community Consultant, they are to clarify exactly what is being covered
and ask the Consultant to send a shared care style agreement to formalise the
arrangement.
9. Following the Practice Meeting a search for children with multiple complex needs
was unde1taken and identified eight children within the Practice. Further examination
of their notes was undertaken to ensure that the code 'has a carer' was recorded, and
then cross referenced with their registered parents/guardians so that in each of their
notes, it was coded that they were 'a carer'. Each child was then allocated a named
GP. The GP was informed, and it was highlighted as an alert on the child's records.
10. The named GP, as per the recommendations received from Lewisham Clinical
Commissioning Group, was also changed to align with their allocated named GP for
this purpose. The search is run every month during the Children Safeguarding MDT
meeting. Since the GPs have started this process, one further child has been added to
the register. The GPs hold the register of children with named GPs in a shared drive
that is accessible to all clinicians.
11. D r - provided a witness statement to the Coroner at the Inquest in January 2020.
Dr -submitted an Action Plan which the GPs had formulated following the
Serious Case Review on 4 July 2019. The GPs has now implemented the changes
proposed in the Action Plan, in particular, that children with complex needs are to
have at least one named GP. We enclose a copy of the completed Action Plan to this
response.
2. There was also a distressing dispute between the ambulance crew and parents as to
which hospital Omarian should be taken, in the event he was not taken to the nearest
hospital at the insistence ofhis parents (although in this instance the delay was not found
to have contributed to the death).
12. The Coroner comments in their PFD report under 'Action Should Be Taken' that
"Accordingly these agencies and the local hospital are the subject ofthe report as in
my opinion their joint action should be taken to prevent future deaths." In light of the
Coroner's concerns, a multi-agency meeting took place on 14 July 2020. The purpose
of the multi-agency meeting was to discuss the PFD Report and the concerns raised
by the Coroner in order for a joint response to be prepared.
13. During the multi-agency meeting Dr-was able to feedback to the agencies what
changes have been implemented at the Practice following the Coroner's conclusions,
such as, the new Practice policy regarding antibiotics and the named GP system for
children with complex needs. By updating the other agencies, it enabled for further
discussions to be generated about how they could impact on the changes made by the
GPs. For example, there was a discussion with Lewisham CCG in respect of every
Practice across Lewisham having a designated GP for children with complex needs.
14. There were also lengthy discussions during the multi-agency meeting in respect of
'Coordinate My Care'. This has been raised by other agencies as a way to have access
to patient information from different agencies. The Practice has CMC embedded into
their medical records system. The GPs have been using CMC regularly since its
inception in 2015 for adult patients as a platform to share medical information with
outside agencies such as London Ambulance Service, 111 and the local hospice.
Unfo1tunately, the CMC was not available for children during the time of Omarian's
life. The GPs report that CMC is now available for children under the age of 18. The
GPs have subsequently worked through CMC already with one family in the practice
who have specific medical needs and will continue to offer it to all patients going
forward.
15. As the GPs now allocate patients with complex needs to a named GP this means that
there is a point of contact for CMC. This will allow for better communication between
the different agencies. Therefore, if there are any requirements such as a specific
hospital which the parents have requested then that can be made clear to other
agencies involved in the patient's care.
Summary
16. The GPs have worked hard to implement changes to ensure that the concerns which
have been raised by the Coroner have been addressed. The Coroner had concerns in
respect of the GP's lack of awareness that Omarian had started a course of antibiotics
and were also unaware ofOmarian's subsequent deterioration. The Practice want to
guarantee that where there are cases similar to Omarian' s that the appropriate safety
netting measures are in place.
17. There were important discussions at the multi-agency meeting which were greatly
beneficial for the GPs. It allowed for there to be discussions relating to how the
Practice can implement changes and how other agencies can support those changes.
The Learned Coroner will note that a multi-agency response has been formulated
which gives an overview of how each agency has implemented their own changes and
also how they are working together to ensure there is effective co-ordination between
the different agencies. The GPs are committed to having a coordinated multi-agency
approach to future patients.
5 August 2020
Gordons Partnership LLP
Edgeborough House
Upper Edgeborough Road
Guildford Surrey
GUI 2BJ
Our Ref: LRL/MDU00 1.1118
GP Partners:
Sydenham Green Group Practice
26 Holmshaw Close, London SE26 4TH
Tel: 020 3049 2820
Fax: 020 3049 2821
Web: www.sydenhamgreenpractice.co.ujs
E-ma iI: LEWCCG .g85024~genera l@n hs. ne~
Sydenham Green Group Practice Procedures & Protocols
Protocol for the Prescription of "Rescue pack" Antibiotics in Children
Date: July 2020
Review due: January 2021
Summary.
The prescription and use of rescue pack antibiotics in children is not a common
occurrence. The development of this protocol is to ensure that all GPs in the practice have
a framework to aid them through safe decision making in the prescribing process.
• The prescription of rescue pack antibiotics will only be undertaken upon the advice
of a secondary care clinical team.
• The GP will clarify that these instructions are clear and are accompanied by a clear
care plan.
o Key areas that must be recorded and discussed with the family are; when the
GP is to prescribe these antibiotics, when they should be started by the
family, when the family is to inform the GP that the antibiotics have been
started, and at what stage after antibiotics are commenced that follow-up by
the GP is required.
•
Internal follow-up will occur within the GP practice to ensure that the named GP for
the child is aware that the child has been commenced on the course of rescue pack
antibiotics.
• Timely review of the ongoing availability of rescue pack antibiotics. Medication
reviews are undertaken at least once yearly in primary care. We should expect
information from the secondary care clinician as to whether the use of rescue pack
has been reviewed by their team. If not, we will no longer be prepared to carry on
prescribing rescue pack antibiotics.
Practice Manager
29th June 2020
Present:
GP:
The meeting was held to discuss the Coroner's report into the death of Omarian Brooks (DOB 27-02-2006, DOD
27/05/2017). The Coroners judgement and Preventing Future Deaths report are below:
Brooks0marian PFD
V2docx.docx
Brooks0
Judgment.docx
The relevant section of the PFD report is as follows:
ACTION SHOULD BE TAKEN
It is not for the court to determine whether earlier admission to hospital of potentially septic disabled children is achieved by a
Patient Specific Protocol or Child in Need Plan or by way of mandating informing the general practice that antibiotics had
been started, or a combination of these or other forms of multi-disciplinary care. Accordingly these agencies and the local
hospital are the subject of the report as in my opinion their joint action should be taken to prevent future deaths. It is not cleai;,
that the steps taken by the general practice for the duty doctor to inform colleagues of a consultation, nor the action plan by ·•···... :
the Borough implementing the recommendations of the SCR, which refers to standby antibiotic usage (and not
communications with the GP), and does not specifically involve the London Ambulance Service can be relied upon to prevent
such a death recurring. Some information was submitted after conclusion of the inquest by L&G NHS Trust, which had not
been admitted as evidence and may usefully be part of the response to the report. I believe that these organizations would wish
to learn of the evidence given in the inquest about the circumstances of this death and can mitigate or prevent future deaths by
articulating their joint action.
The suggestion is that the practice should work with other parties {London Ambulance Service, Lewisham & Greenwich NHS
Trust) to coordinate a response. To that end NHS South East London CCG have been approached for support. In the interim,
the practice has discussed the following:
1. Developing and putting in place a quarterly meeting to discuss children aged 5-18 with complex medical needs who
are not discussed with as part of the Health Visitor MDT ages 0-5 or the Palliative Care/ Community MDT ages 18+.
It is envisaged that most SGGP GPs attend this and each bring a small number of cases to be discussed. Dr -o
coordinate the list of patients covered.
'.
2. As a result of this death, all children coded as having complex needs have been allocated to a named GP. Letters for
these patients are to be brought to the attention of that named GP as they are found. The named GP is also to
consider discussing with the families of the children whether they should have a Coordinate My Care plan in place
to share treatment plans with other services.
3. Where a GP receives a request for rescue antibiotics or similar from a hospital or community consultant they are to
clarify exactly what is being covered and ask the consultant to send a shared-care sty!e agreement to formalise the
arrangement.
4. Drllllis to approach the CCG, LAS and UHL to organise a meeting to discuss a more systemic response as the _'
steps above would need to be acted on in a borough/SEL-wide basis to have a meaningful impact.
',,
Lewisham
Clinical Commissioning Group
8th January 2020
Letter to General Practitioners,
Dear Colleagues,
I write to draw your attention to the recommendations of a Serious Case Review
undertaken by Lewisham Safeguarding Children Board.
The review was undertaken following the sad death of an 11 year old boy who did
not survive a cardiac arrest while on transfer to hospital. He and his family were
known to social, primary, secondary and tertiary services due to his complex medical
and health needs and there had been known concerns around the relationship
between health partners and the child's carers.
The findings of the review panel identified learning for all agencies involved in the
care of the child. The two key recommendations for GP practices across Lewisham
borough are shared here:
• The importance of a co-ordinated approach for children with complex needs.
This resonates with other Serious Case Reviews both locally and nationally.
In order to support a coordinated approach it is a recommendation of the review that
a child with complex health needs has one or two named GP's identified within their
registered practice. This will provide continuity of care for the child and carers and
help practices to have clear oversight of the care provided.
•
In addition it was recognised that a conscious process needs to be in place to
consider the health of carers of a child with complex medical and health
needs and how this will impact on the outcome for children. While a full
medical for such carers is best practice, we recognise this is currently not
commissioned. Lewisham CCG will raise this issue with NHS England.
In the meantime, we ask that you are mindful of the health of such carers in your
contacts with children, in order to have a clear picture of the lived experience of the
child.
We would be grateful if these two recommendations taken on board and processes
put in place to implement them and improve the outcomes for children with complex
medical and health needs
Yours sincerely
Director of Nursing and Quality
Date of Last Search
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08/07/2020
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23/05/2009 WM
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24/08/2006 NH
24/05/2010 TQ
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10/06/2014 ES
29/01/2019 JP
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CCG
Letter to NHS England
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health checks has been
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s 5-11 Theobalds Road London WC1X 8SH - Phone: 020 7092 6171 clinical.standards@rcpch.ac.uk www.rcpch.ac.uk Wednesday, 01 July 2020 Sent by email to: @southwark.gov.uk Dear Coroner A Harris Re: Master Omarian Brooks Regulation 28 – Action to Prevent Future Deaths I have read carefully your report regarding the tragic and untimely death of Omarian Brooks and have discussed this with senior colleagues within the RCPCH in order to respond to your request. You have asked us to consider how to offer advice on mitigating such tragedies and I would like to offer the following response. COMMUNICATION AND CARE PLANNING • Children with complex disability should have a named neurodisability paediatrician responsible for regular review, and to provide health information for developing health care plans. This will include plans for management in different settings and done in conjunction with the education health care plans, with plans for management in school, at home, in respite care, and for transport and emergency situations. Plans should be developed with parents and carers, and by those providing the care in different settings, and should be shared with primary care teams. • RCPCH standards for emergency care1 describe the importance of linking emergency care settings with specialist nurses and community children’s nursing teams to ensure effective planning and follow-up. • Whilst we do not have all the details or specifics of the case, a breakdown in communication between the parents and health professionals involved in Omarian’s care may have occurred. The College will continue to signpost and develop courses that focus on ensuring awareness of communication issues in relation to children with disability, all of which emphasise the importance of listening to parents and of ensuring patient-centred care. We 1 https://www.rcpch.ac.uk/sites/default/files/2018-06/FTFEC%20Digital%20updated%20final.pdf Charityin England and Wales: 1057744 - PATRON HRH The Princess Royal Registered charity in Scotland SCO38299 • have developed toolkits with children and young people with a hidden condition or illness to help raise awareness of conditions and support services2. In 2018, the College brought together the Royal College of General Practitioners, Royal College of Nursing, Royal College of Physicians and Royal College of Psychiatrists to develop Facing the Future: Standards for children with ongoing health needs3 to ensure connectivity between services, with a focus on improving long term care and management so that care is planned and proactive - particularly with improving communication and education for both the child and family, and communication between professionals. • The standards recommend that service planners, providers and commissioners work together to ensure children and young people experience a high-quality and safe service that empowers children and their families to access timely care for the management of their condition. This includes ensuring a prompt and timely diagnosis with local networks improving communication between professionals so that children and families are supported to manage their conditions. • The College has a published position on information sharing and maintains that having a unique, consistent identifier for children will allow professionals interacting with children to share information easily and provide better care for their needs.4 SEPSIS: RECOGNITION AND MANAGEMENT • The College and NHS Improvement developed a framework with clinicians and experts to improve recognising and responding to children at risk of deterioration5. This was in response to research showing that failures to recognise and treat patients whose condition was deteriorating causes significant unintended harm. • The College has also developed free to access paediatric sepsis podcasts that have been designed as educational resources for health and social care professionals. They explore what sepsis is, the complexities of how to recognise and manage sepsis, what is different about sepsis in children with complex health conditions and much more6. • The College is also working with NHS England and the Royal College of Nursing to develop a systematic paediatric early warning system, to develop a consistent approach and common language to promptly recognise 2 https://www.rcpch.ac.uk/resources/hidden-health-parent-led-card-toolkit 3 https://www.rcpch.ac.uk/sites/default/files/2018- 04/facing_the_future_standards_for_children_with_ongoing_health_needs_2018-03.pdf 4 https://www.rcpch.ac.uk/resources/nhs-number-unique-identifier-children-position-statement 5 https://www.rcpch.ac.uk/resources/safe-system-framework-children-risk-deterioration 6 https://www.rcpch.ac.uk/resources/paediatric-sepsis-podcasts Charityin England and Wales: 1057744 - PATRON HRH The Princess Royal Registered charity in Scotland SCO38299 and respond to the acutely ill or deteriorating infant, child or young person. Thank you for raising this important case and reminding us of the importance of this work. Yours sincerely Professor President, Royal College of Paediatrics and Child Health Charityin England and Wales: 1057744 - PATRON HRH The Princess Royal Registered charity in Scotland SCO38299
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